The fundraiser called "We're Skatin for Liam and Kaitlyn" was held on May 3rd and was so much fun! Family, friends and others gathered at Kate's Skate in Indian Trail, NC for a good time and to raise funds for our family as well as the Fudge family to help with medical bills for Kaitlyn and Liam. Our friend, Anne Ward, created the fundraiser and we are so thankful for all the work that she put into it. It really was a great event. I haven't been on a pair of rollerskates in a long time but it was SO great to let loose and have some fun.
Kaitlyn was in her Special Tomato chair that has a base with wheels and she watched as we skated by. She really enjoyed the music and all the people who came out to support her.
Chip rockin' his skates!
Kaitlyn and her Memere, Gigi and Pepere!
Liam and his parents Brian and Dawn Fudge
Kaitlyn hanging out!
Kaitlyn's cousin Makayla (on the left) with some of her friends
Anne (friend and fundraising coordinator) and Me
Anne did an amazing job getting the word out about the event to the local media. We were interviewed in our home by Fox Charlotte and they were also at the event.
Here is the feature story Fox Charlotte did on the event:
Here is an article on NBC Charlotte's website:
Skate-a-thon to Help Local Children with Life-Threatening Illnesses
The Charlotte Observer had the event listed in the paper as well as online:
Skating Event will help 2 Children
Just being able to have the words "Niemann-Pick Disease" being used in the media, makes a huge difference. A few days later, on Hoda and Kathie Lee on the Today Show, they featured a boy with Niemann-Pick Type C. The more we can get the message out to the public about this disease, the more attention it will generate and ideally more funding for research.
A HUGE thank you again to all of our friends, family and community members who came out to support Kaitlyn and Liam at Kate's Skate!
Kaitlyn was in her Special Tomato chair that has a base with wheels and she watched as we skated by. She really enjoyed the music and all the people who came out to support her.
Chip rockin' his skates!
Kaitlyn and her Memere, Gigi and Pepere!
Liam and his parents Brian and Dawn Fudge
Kaitlyn hanging out!
Kaitlyn's cousin Makayla (on the left) with some of her friends
Anne (friend and fundraising coordinator) and Me Anne did an amazing job getting the word out about the event to the local media. We were interviewed in our home by Fox Charlotte and they were also at the event.
Here is the feature story Fox Charlotte did on the event:
Here is an article on NBC Charlotte's website:
Skate-a-thon to Help Local Children with Life-Threatening Illnesses
The Charlotte Observer had the event listed in the paper as well as online:
Skating Event will help 2 Children
Just being able to have the words "Niemann-Pick Disease" being used in the media, makes a huge difference. A few days later, on Hoda and Kathie Lee on the Today Show, they featured a boy with Niemann-Pick Type C. The more we can get the message out to the public about this disease, the more attention it will generate and ideally more funding for research.
A HUGE thank you again to all of our friends, family and community members who came out to support Kaitlyn and Liam at Kate's Skate!
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