Kaitlyn's Korner: Children's Artwork for Kaitlyn

Children's Artwork for Kaitlyn

Artwork for Kaitlyn from NC, TN/GA and VA!

Student Art from Charlotte, NC- 4th and 5th graders from Charlotte United Christian Academy

Student Art from Signal Mountain, TN/GA

Student Art from Marshville, NC

From Kaitlyn's Playgroup that she used to attend when she was younger and also some from friends and neighbors!

5 comments:

AnonymousFebruary 15, 2012 at 12:17 PM
WOW!How sweet,amazing and thoughtful are these messages! God bless these sweet children.

Sending prayers today and always of peace and comfort for Kaitlyn and family.
ReplyDelete
Replies
RebeccaFebruary 15, 2012 at 1:22 PM
These are amazing!!! This morning I was driving to work and heard a song that I know I have heard 1000 times before, but for whatever reason this morning I heard this line:

Lord make me a rainbow, I'll shine down on my mother
She'll know I'm safe with you when she stands under my colors

And then I saw the sweet picture of the rainbows that the students drew for Kaitlyn and knew that I had to share it with you:)

You are in my prayers every day, Kaitlyn is a miracle.
ReplyDelete
Replies
AnonymousFebruary 17, 2012 at 7:16 AM
these are so precious and priceless. When Zoe was at Duke she would receive pictures and cards like this from the kids at our church. She had the best decorated room there, in my opinion. :) I check in daily, please know you continue to be in our prayers!!!

April Van Dyke
Mom to Angel Zoe
ReplyDelete
Replies
AnonymousFebruary 17, 2012 at 8:42 AM
As I looked at those sweet pictures, tears were rolling down my cheeks. God is good...all the time, even when we don't understand things. My prayers are with all of you.

May God bless all of you with His comfort.
ReplyDelete
Replies
Catherine AndersonFebruary 23, 2012 at 1:41 PM
Gifts like these are priceless!!! Just to see the love, innocence, and pure goodness in a child's heart can melt away your sorrow if only for a moment. LOVE!
ReplyDelete
Replies

Add comment

About Niemann-Pick Disease

Niemann-Pick Disease is a lysosomal storage disease that affects metabolism and is caused by genetic mutations. In order for a child to have Niemann-Pick Disease, both parents must be carriers of a genetic mutation causing Niemann-Pick. There are three types of Niemann-Pick Disease, Types A, B and C.

Kaitlyn had Niemann-Pick Disease, Type A, the most severe of the three types. She lacked an enzyme called acid sphingomyelinase. Since she didn't have this enzyme, her body couldn't get rid of sphingomyelin. Sphingomyelin has nowhere to go so it accumulated in her cells, eventually causing cell death and the malfunction of major organ systems.

Those with Type A typically live to be only 2 to 4 years of age. There are approximately 1,200 cases of type A and B worldwide with the majority being Type B. There is currently no treatment or cure for the disease. When Kaitlyn was alive, she was 1 in 5 in the United States with Type A.