WOW!

We are so blown away by all of the support everyone is giving us and in sharing Kaitlyn's story. It fills our hearts with so much joy that the video has touched so many people's hearts enough to share it with others.

Kaitlyn fell asleep holding Cousin Makayla's hand... actually they both fell asleep :-)

Knowing that Kaitlyn has made an impact on others' hearts and continues to make an impact is the whole reason she is here. To teach us about what is important in life and to cherish every moment we have with each other. 

Thank you from the bottom of our hearts for continuing to share Kaitlyn's video and our blog with others. The more people we can make aware of Niemann-Pick Disease and help raise funds for research the better. Since it is such a rare disease, it doesn't get much attention but with your help, we can help them find a cure so that no family ever has to go through this again. We can all make a difference.

Kaitlyn and Cole taking a snooze together

We are also so excited to see that many of you are taking the 11-11-11 Challenge and finding 11 people to donate $11 to the Niemann-Pick Disease Foundation. Please make sure when you donate, that you specify that it is for Type A/B and add Kaitlyn's name on the form. This way the money will go directly to research for Type A/B. Kaitlyn is 1 of only 5 children in the US with Type A! Here is a direct link to donate online.  Donate here. You can also donate through Kaitlyn's Fund on the right hand side of this page.

Thank you all so much and please continue to help raise awareness of Niemann-Pick Disease. Together we can make a difference!