A home health nurse is going to come out tomorrow to bring us a feeding pump for overnight feeds and show us how to use it. We were taught here at the hospital how to use the G-Tube for feedings where you push the food in the tube using a large syringe but not how to use and program the actual pump. We will also need to get all of the other equipment like drip bags, syringes, and coverings figured out. We are still going to feed her bottles as well since she can still tolerate them. This way we will transition her to just G-Tube feedings over time.
Being silly.
We decorated her room. Here is her wall of cards.
Playing a lot more now.
I came across your blog on Angela Mackert's FB page and was so touched. What a beautiful little girl! I am honored to donate to such a wonderful cause and am sorry that I don't have more to give. I will keep your family in my thoughts! Thanks for sharing your story.
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