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| I always think of Kaitlyn when I see this painting. Done by an 11 year old! http://www.artakiane.com |
Since March 22nd, the day Kaitlyn passed away; it
has been like throwing a deck of playing cards in the air and picking them up
one by one.
Each card is different, yet evokes different emotions and some you find
where you least expect them to be.
I know that God has a plan and that once I pick up all the
cards, I will be able to move forward and make a difference in this world, just
like Kaitlyn did.
The bond between a mother and her child is one that is so
deeply rooted in the soul that it is almost incomprehensible. The emotions I
have felt range from joy that I got to BE her mother and that she made such a
difference in others’ lives, to anger and rage that her innocent life was taken
away.
I am dedicated to making sure Kaitlyn is never forgotten and to helping other families who are going through a similar situation cope and get the support they need. They
need the support and knowledge of someone who has lived and seen first-hand
what NPA can do.
Sorry if I have been quiet lately, I just have to pick up the cards first.
P.S. A wonderful piece of news... I was recently nominated to be on the Board of Directors for the National Niemann-Pick Disease Foundation! Not official yet, but I know that I can make a significant impact on the NPD community and accelerate the search for a cure. If anyone knows me well enough; when I say I'm going to do something, I put everything I've got into it. Look out NPD!
I will NEVER let Kaitlyn be forgotten either. You are always in my thoughts and prayers.
ReplyDeleteYour absence has caused me to increase my prayers for you and your family. I cannot even try to imagine how life is now for you all. I keep Kaitlyn's little link photo in my toolbar and say a prayer for her and you every time that I see it. NPD couldn't be more blessed than to have you on board. xoxo
ReplyDeleteNo need to apologize for being quiet! Thanks for being you, being tenacious, and sharing Kaitlyn with all of us. We love you, and SHE will MEVER be forgotten!
ReplyDeleteThanks for posting. Ur family will always be in my thoughts. Nobody could ever be upset with you being quiet. I am thankful you checked in. I was wondering how you and ur family were doing. I thought I fell in love w/ kaitlyn, I was mistaken, I fell for the whole beautiful family! God Bless! Love, Jeanette NH
ReplyDeleteCongrats Deanna on the nomination!!!
ReplyDeleteCongrats on the nomination, I know you will make a difference, just as your sweet baby girl has and continues to do. Everyday I think of Kaitlyn. Everyday I take the time to be thankful that my child, is healthy. Everyday I take the time to feel blessed for knowing Kaitlyn's story, and the change it has had on me, not just as a mother, but as a person. God Bless You!
ReplyDeleteMay God continue to let His Grace shine on your family. You will do great things in His name and for Kaitlyn's memory. You already have! Prayers...
ReplyDeleteE. Hannon
Kaitlyn will never be forgotten!! She was and is so amazing and beautiful!! And a huge congrats to you!! We all know you can do this:)
ReplyDeleteCongrats on the nomination! Kaitlyn will not be forgotten. The card analogy is so true as to the emotions felt after the loss of a child or any close family member.
ReplyDeleteKaitlyn will never be forgotten! She has changed and touched lives all over the world. My thoughts are with you and your family as you deal with this devastating loss. Please take your time and concentrate on your health and well being. We will all be here when you are ready to start writing again. Big hugs from Canada.
ReplyDeleteDeanna we continue to think of and pray for your family. My 10 & 6 year old mention Kaitlyn often. She left a lasting impression on our hearts.
ReplyDeleteYou will eventually pick up all of the cards and then know what to do next.
Congratulations on being nominated to the Board of Directors!! That is terrific news!
Your knowledge and personal experience are going to be so valuable.
Thank you for checking in. God bless you all.
Kim -Maine
I still keep you in my thoughts and prayers everyday! Little Kaitlyn will never be forgotten......she has touched so many lives.
ReplyDeleteAli Reardon
Congratulations on the nomination. It sounds like God has lots more plans for you in the world of NPD. I know there are others out there that need to hear your story and to have your support. Kaitlyn's life will continue to change our world'
ReplyDelete<3
ReplyDeleteYou will continue to pick up cards for many years. Congrats on the Board nomination! I may see you there!
ReplyDeleteCongratulation on the nomination! Prayers for strength still being sent your way.
ReplyDeleteWe can't imagine (nor do we want to have to) what you are going through as a mother. I think of you often and pray for you each time I do. Keep going for Cole!
ReplyDeleteMany blessings,
an Indian Trail friend
I think of you, Chip and Cole and keep praying for you daily. Your strength continues to amaze and inspire me to be a better mother to my own child. Thank you for continuing to share your story with us. Congratulations on being nominated for the Niemann-Pick Board of Directors. You will be outstanding. What a wonderful way to honor your daughter.
ReplyDeleteSarah Russell
Indian Trail, NC
Dear Deanna, you are the most strongest, loving person that I know.Thanis so much for being a part of my life.Kaitlyn will never be forgotten, I have shared her with so many.She is my light, and I think of her daily, for you see, she is a love that will never die, or her light will never be put out.Congratulations on the board of directors,I' m always here to help. My love,prayers to you and Chip, and Cole.
ReplyDeleteKaitlyn's Wen-My motto is the same as sweet Kaitlyn's Soar high and shine!
Congratulations!! I continue my thought prayers & love for you all!!
ReplyDeleteYay! What exciting news! Congrats on the nomination. And also for the honor of being the mom of such amazing children. I can also assure you that your sweet girl will always be remembered! God bless you all!
ReplyDeletePS...I recently learned of another family, different genetic condition, but similar bittersweet story. If you would, please add this family to your prayer list. And if you're interested, and able, check out their neat children's book. www.benbeesleybook.com
God is good and His plan will fall into place.
Shannon in Spartanburg
Thank you for sharing I still pray for your family.
ReplyDeleteCongrats on the nomination. Kaitlyn would be so proud of you. :) I cant imagine what you are going through but it is so nice to see a post from you again.
ReplyDeleteHow is Cole??
Thank you so much for sharing. Kaitlyn will never be forgotten! we are still thinking about her and your family! Congrats on your nomination and please keep us updated! always love reading your post, your all still in my thoughts and prayers!
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