|I always think of Kaitlyn when I see this painting. Done by an 11 year old! http://www.artakiane.com|
Since March 22nd, the day Kaitlyn passed away; it has been like throwing a deck of playing cards in the air and picking them up one by one.
Each card is different, yet evokes different emotions and some you find where you least expect them to be.
I know that God has a plan and that once I pick up all the cards, I will be able to move forward and make a difference in this world, just like Kaitlyn did.
The bond between a mother and her child is one that is so deeply rooted in the soul that it is almost incomprehensible. The emotions I have felt range from joy that I got to BE her mother and that she made such a difference in others’ lives, to anger and rage that her innocent life was taken away.
I am dedicated to making sure Kaitlyn is never forgotten and to helping other families who are going through a similar situation cope and get the support they need. They need the support and knowledge of someone who has lived and seen first-hand what NPA can do.
Sorry if I have been quiet lately, I just have to pick up the cards first.
P.S. A wonderful piece of news... I was recently nominated to be on the Board of Directors for the National Niemann-Pick Disease Foundation! Not official yet, but I know that I can make a significant impact on the NPD community and accelerate the search for a cure. If anyone knows me well enough; when I say I'm going to do something, I put everything I've got into it. Look out NPD!