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| Jacob! |
Sweet Jacob Brooks (NPA) passed away a few days ago on November 15th, 2012. His mother, Sarah, said that he passed away peacefully in her arms. She also has a blog dedicated to Jacob. Please check it out. (The Joy of Jacob) Our hearts and prayers go out to this amazing family and for the strength to persevere. Please keep them in your thoughts and prayers.
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| The Brooks family |
I hope Sarah doesn't mind me sharing this but when I first made contact with her we found out that she and I have the exact same gene mutation (E352X) on the SMPD1 gene. I understand for some of you it's a foreign language (It does sound nerdy doesn't it? "So what's your SMPD1 gene mutation?!"). When Kaitlyn was diagnosed, we were told that the E352X mutation had never been seen before. Small world right?! I honestly believe that Sarah and I are probably distant relatives. What are the odds of having the same gene mutation that had "never been seen before". Guess they can add that one to the list. Thought some of you might think that was interesting.
Here is the information for services to be held for Jacob. Obviously most of you don't live in California but maybe you can have a moment of prayer for them during these times, light a candle in his memory or simply be extra aware of everything you have to be thankful for this week and that the Brooks family has to do the unthinkable and lay their son to rest. May God bless their family and fill their hearts with loving memories of Jacob.
Tuesday, November 20th, 2012
Celebration of Life Memorial -- 10:30 am
Hope Center
2275 Morello Avenue
Pleasant Hill, CA 94523
* Corner of Taylor Blvd. and Morello Ave.
(925) 685-4673
All family and friends are welcome. Reception immediately following at the same location.
Private Graveside Burial - Time to be determined
Family only
Queen of Heaven Cemetery - Holy Innocents area
1965 Reliez Valley Road
Lafayette, CA 94549
In lieu of flowers, please consider making a donation to the National Niemann-Pick Disease Foundation in memory of Jacob Lee Brooks. Click here to donate.
Hello ~ I am Jacob's Grammie Kathy. I Love to read Kaitlyn's blog & see the family pictures of such a Wonderfully devoted family. Kaitlyn's pictures are on Sarah and Josh's fridg, and I see her and send love to her and your famuily ,Always. Thank you for thinking of Jacob & being such a Wonderful support to Sarah and Josh ~ I miss Jacob with All my Heart, and cannot put into words what it is like seeing your children loose their child, along with saying FareWell to heaven to my first born Grandchild. God Bless you Bourgeault Family, Always Love, Kathy Kelly
ReplyDeleteI am continually struck by the support the NPD families offer one another. I know from the many responses that I see that the support of the blog communitiy is very important to you all and for that, we are grateful. But it must be extra special to see the supportive posts made by other NPD families who, in their own time of grief and struggle, take the time to send their love. I know that this remarkable community of people will someday make this awful disease a thing of the past.
ReplyDeleteI thought of you today while I was watching the Today show. They had Mrs. Bush on and shewas talking about the loss of her 3 year old to Cancer 60 years ago. My heart broke for her when she said that at that time there was no treatment, no cure. They were told to take their beautiful girl home and love her. But they fought for her life, and even though cancer stole her they donated her body to science. Now 60 years later the recovery rate is not 0 as it was then, for thier daughter. It is my sincere hope and prayer that it will not take 60 years to find a cure for NPA, but I know with everything in me that through your struggles, and through all of the other families that are fighting for their children that your efforts will make a difference.
ReplyDeleteMy love to you & to Jacob's family.