First off, Kaitlyn is doing okay, all things considered. We took her to the pediatrician this morning and her oxygen concentration was low and she definitely had congestion in her chest and some wheezing. Her pediatrician had us admitted to the hospital around lunch time today. We are on the same floor at the hospital as we were last week so many of the nurses already knew Kaitlyn and even had her formula, pump bags and thickener in the room before we got there! It was very nice but also hard knowing that Kaitlyn has become a regular at the hospital.
Once we got settled, they did a chest x-ray, blood culture (to see if there is any bacteria in her bloodstream), a urine culture and a viral swab to test for viruses. The chest x-ray came up "negative" for pneumonia but there is one area in one of her lower lobes of her lungs that they are a little concerned about. They are going to have the pediatric radiologist look at it more closely in the morning. They started her on an antibiotic just in case she has an infection. They did the viral swab to see if she still have parainfluenza 3 or if she caught something else.
Right now, Kaitlyn is sleeping well. They are coming in every 4 hours to give her breathing treatments but they won't have to wake her up for them, which is good.
To add more complexity to everything else that's going on, her G-tube decided to start failing! Inside her stomach is a little balloon that holds the G-tube in place. Stomach acid can eventually pop the balloon or the balloon can shrink and cause leaking. We've seen leaking before but this time stomach contents were flowing out around the G-tube site anytime she tightened her belly. At least we were in the hospital when it happened, although they haven't fixed the problem yet. We have been feeding her at a slower rate with her pump so that her belly doesn't get too full and spills contents out. The surgery folks will hopefully just put her button in tomorrow morning.
We appreciate all of the prayers that you have all been saying for Kaitlyn. It really means a lot to us and we can't thank you enough. We definitely need them right now. The reality of this disease hits hard when we are in the hospital with Kaitlyn.
Once we got settled, they did a chest x-ray, blood culture (to see if there is any bacteria in her bloodstream), a urine culture and a viral swab to test for viruses. The chest x-ray came up "negative" for pneumonia but there is one area in one of her lower lobes of her lungs that they are a little concerned about. They are going to have the pediatric radiologist look at it more closely in the morning. They started her on an antibiotic just in case she has an infection. They did the viral swab to see if she still have parainfluenza 3 or if she caught something else.
Right now, Kaitlyn is sleeping well. They are coming in every 4 hours to give her breathing treatments but they won't have to wake her up for them, which is good.
To add more complexity to everything else that's going on, her G-tube decided to start failing! Inside her stomach is a little balloon that holds the G-tube in place. Stomach acid can eventually pop the balloon or the balloon can shrink and cause leaking. We've seen leaking before but this time stomach contents were flowing out around the G-tube site anytime she tightened her belly. At least we were in the hospital when it happened, although they haven't fixed the problem yet. We have been feeding her at a slower rate with her pump so that her belly doesn't get too full and spills contents out. The surgery folks will hopefully just put her button in tomorrow morning.
We appreciate all of the prayers that you have all been saying for Kaitlyn. It really means a lot to us and we can't thank you enough. We definitely need them right now. The reality of this disease hits hard when we are in the hospital with Kaitlyn.
Deanna, Thank you so much for sharing this journey. I pray now that Kaitlyn's hospital stay will be short andt that, while she is in the hospital, she will not be anxious but will be calm and comfortable as her body heals from this health problem. I pray that you, Deanna, will especially feel God's love, peace & presence in your life. In Jesus Name, Amen . . .
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