Watching the numbers go up and down

Today Kaitlyn is about the same as she was yesterday. We got her G-tube fixed so it's not leaking anymore! She still has a lot of congestion and wheezing even with breathing treatments and suctioning. She was put on oxygen overnight because her oxygen concentrations were dipping in the 80s. Every time it drops below 92, the monitor alarms. So all night I was up and down checking on her until about 2 am when we started the oxygen. Right now she is off of oxygen but the true test will be tonight when she is in a deep sleep to see if it goes down again. 

Her chest x-ray was read again this morning and the pediatric radiologist said that it was negative for pneumonia. Her blood culture came back negative and we are still waiting on the viral swab and the urine culture to come back.  They are keeping her on antibiotics until the other test results get back. We should have the viral test results anytime now. This will tell us if she is still fighting off the parainfluenza 3 or if it is a different virus. 

The only reason that we are still here is because of her oxygen concentrations being low. Once her oxygen levels are up without assistance, we will be able to go home. So far she is doing well but again, it will be tonight that is the real test.

Having fun with MacKenzie

Kaitlyn has been smiling a lot more today and has been taking good naps so I feel like she is at least getting good rest here. The staff at Levine is great too and has been really great to us. MacKenzie, a Child Life Specialist, in particular is hilarious and wonderful at her job of entertaining the patients and makes not only Kaitlyn laugh but Chip and I too. It really makes a difference when you are stressed and worried the majority of the day to have a good laugh. Here is a video of some of her antics.