Kaitlyn's Korner: Parainfluenza 3

Monday, April 4, 2011

Parainfluenza 3

We just found out that Kaitlyn has parainfluenza 3 (PIV-3), a common cold virus. Here is a link to the World Health Organization on parainfluenza 3:
About Parainfluenza 3

1 comment:

AnonymousJune 24, 2012 at 9:37 PM
i just came across this wonderful blog about ur gorgeous daughter. my son passed away at the age od 19 months of the paraflu 3 virus. thank you so much for posting this and God bless.
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About Niemann-Pick Disease

Niemann-Pick Disease is a lysosomal storage disease that affects metabolism and is caused by genetic mutations. In order for a child to have Niemann-Pick Disease, both parents must be carriers of a genetic mutation causing Niemann-Pick. There are three types of Niemann-Pick Disease, Types A, B and C.

Kaitlyn had Niemann-Pick Disease, Type A, the most severe of the three types. She lacked an enzyme called acid sphingomyelinase. Since she didn't have this enzyme, her body couldn't get rid of sphingomyelin. Sphingomyelin has nowhere to go so it accumulated in her cells, eventually causing cell death and the malfunction of major organ systems.

Those with Type A typically live to be only 2 to 4 years of age. There are approximately 1,200 cases of type A and B worldwide with the majority being Type B. There is currently no treatment or cure for the disease. When Kaitlyn was alive, she was 1 in 5 in the United States with Type A.