Kaitlyn's Korner: Prayers needed

Thursday, August 18, 2011

Prayers needed

Big prayers are needed for Kaitlyn right now. The EEG showed that the episodes that she is having are not seizures but her brain not telling her body to breathe. She had a scary episode where her oxygen levels went into the 40s and the nurse had to give her rescue breaths with the bag/mask to get her to start breathing on her own.

We aren't sure what is going to happen next. Please pray for Kaitlyn.

9 comments:

AnonymousAugust 18, 2011 at 6:43 PM
Praying, praying, praying. E. Shelton, Stanley, NC
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UnknownAugust 18, 2011 at 7:15 PM
Our prayers are with you Kaitlyn.
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Amanda PasquarelloAugust 18, 2011 at 7:26 PM
Praying for Kaitlyn.
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AnonymousAugust 18, 2011 at 7:38 PM
Praying ....I wish there was more that we could do to convince God...
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KirkKrewAugust 18, 2011 at 8:26 PM
Praying for you all!
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LeiaAugust 18, 2011 at 8:27 PM
Prayers lifted for all of you.
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AnonymousAugust 18, 2011 at 9:22 PM
PRAYER'S R SENT TO YOU GUYS AND I AM THINKING OF KAITLYN EVERYDAY AND NIGHT SHE IS VERY STRONG AND WILL GET THROUGH THIS<3 MY GOD GRANT YOU GUYS PEACE>3
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Aunt Nancy and Uncle RogerAugust 19, 2011 at 12:35 AM
Praying for all of you, that God may give you strength and help you through all of this. We all love you Kaitlyn and many prayers are being sent your way. We love you also Deanna, Chip and Cole.
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AudraAugust 19, 2011 at 1:03 PM
I have had you all on my mind a lot today, I have been praying and continue to do so. May you have a peaceful weekend
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About Niemann-Pick Disease

Niemann-Pick Disease is a lysosomal storage disease that affects metabolism and is caused by genetic mutations. In order for a child to have Niemann-Pick Disease, both parents must be carriers of a genetic mutation causing Niemann-Pick. There are three types of Niemann-Pick Disease, Types A, B and C.

Kaitlyn had Niemann-Pick Disease, Type A, the most severe of the three types. She lacked an enzyme called acid sphingomyelinase. Since she didn't have this enzyme, her body couldn't get rid of sphingomyelin. Sphingomyelin has nowhere to go so it accumulated in her cells, eventually causing cell death and the malfunction of major organ systems.

Those with Type A typically live to be only 2 to 4 years of age. There are approximately 1,200 cases of type A and B worldwide with the majority being Type B. There is currently no treatment or cure for the disease. When Kaitlyn was alive, she was 1 in 5 in the United States with Type A.