Yesterday Kaitlyn had 3 episodes where she stopped breathing. She had to be given rescue breaths the last two episodes to get her to breathe on her own again.
She has been back on oxygen since the last episode and hasn't had another one yet. The neurologist is giving her Keppra and will also start her on caffeine, which will hopefully help her to continue breathing through these episodes. We really don't know if any of this will help. The disease progression is effecting her brain's ability to communicate adequately with other systems in her body, like her lungs.
When she is awake and not having an episode, she is her normal self, just a little worn out. Our goal is to get her home so she can be more comfortable and with family. Please continue to pray for Kaitlyn.
She has been back on oxygen since the last episode and hasn't had another one yet. The neurologist is giving her Keppra and will also start her on caffeine, which will hopefully help her to continue breathing through these episodes. We really don't know if any of this will help. The disease progression is effecting her brain's ability to communicate adequately with other systems in her body, like her lungs.
When she is awake and not having an episode, she is her normal self, just a little worn out. Our goal is to get her home so she can be more comfortable and with family. Please continue to pray for Kaitlyn.
She's a fighter. ------Kristen lopez
ReplyDeleteMy heart goes out to your family. You all are in our thoughts and prayers.
ReplyDeleteMy family and I have all made sure that we say a special prayer Kaitlyn. May god watch over her and your family.
ReplyDeleteWe will keep Kaitlyn and your family in our prayers. God bless all of you.
ReplyDeleteJust checking in. Praying for your family. E. Shelton
ReplyDeletePraying for you Kaitlyn and your family. Be strong beautiful girl be strong.
ReplyDelete