Kaitlyn is doing really well! She had a few episodes over the weekend but none that were severe. She is still having a hard time smiling and we haven't heard any giggles but we are still trying to get them out of her. We got a couple really great smiles over the weekend. :-)
We enjoyed family time over the weekend and even had super bubble machine time! There were bubbles everywhere!!! Thanks Cheatham family for the cool gift for Kaitlyn. We ALL enjoyed the bubbles!
Before Kaitlyn's recent hospital stay, I was interviewing in-home nurse aides to help out at the house during the week. Now that Kaitlyn's needs are more complex (on oxygen 24hrs/day, the need for suctioning and potential resuscitation) I will be interviewing nurses rather than nurse aides to help out during the day. We had to get approval from the State to get a nurse and we are so appreciative for everyone who made it happen so quickly.
Right now, either Chip or I have to be in the room at all times with her in case she were to have an episode. When her episodes happen, they are really quiet and really fast. We can't run upstairs or walk in the next room to get something really quick if needed so having a nurse at the house will hopefully help out. My mom helps out with Cole when she isn't working but on Thursday and Friday afternoons it will be just me and both little ones!
Today Kaitlyn went to the dentist! We were really concerned about her teeth because it looked as though the enamel was wearing down really bad. The backs of her bottom front teeth looked like corn kernels! We have always brushed her teeth twice a day and she hasn't had anything by mouth since getting her G-Tube in February so we were really concerned about a condition called enamel hypoplasia. It is when the body isn't able to absorb nutrients in food like it should, causing a vitamin deficiency. The vitamin deficiency can then cause enamel problems in the teeth.
Luckily, it wasn't enamel hypoplasia but rather plaque build-up and they were able to clean it off. We are so, so thankful! Minerals in the saliva can cause plaque to build up even if you brush like you should and don't eat anything by mouth! Crazy stuff.
So far it has been a good start of the week!
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| Hint of a smile :-) |
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| Big smile for Daddy! |
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| Stopped to watch his Big Sis for a minute |
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| Super bubble-tastic! |
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| Cole reaching out to Kaitlyn |
Before Kaitlyn's recent hospital stay, I was interviewing in-home nurse aides to help out at the house during the week. Now that Kaitlyn's needs are more complex (on oxygen 24hrs/day, the need for suctioning and potential resuscitation) I will be interviewing nurses rather than nurse aides to help out during the day. We had to get approval from the State to get a nurse and we are so appreciative for everyone who made it happen so quickly.
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| Snoozing with her pals |
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| Silly Gooses! |
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| She still loves books! |
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| Mommy's Little Monster |
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| Cousin Makayla and Cole- the striped bandits! |
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| Hanging out before bedtime with Pepere |
Today Kaitlyn went to the dentist! We were really concerned about her teeth because it looked as though the enamel was wearing down really bad. The backs of her bottom front teeth looked like corn kernels! We have always brushed her teeth twice a day and she hasn't had anything by mouth since getting her G-Tube in February so we were really concerned about a condition called enamel hypoplasia. It is when the body isn't able to absorb nutrients in food like it should, causing a vitamin deficiency. The vitamin deficiency can then cause enamel problems in the teeth.
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| At the dentist with Daddy |
Luckily, it wasn't enamel hypoplasia but rather plaque build-up and they were able to clean it off. We are so, so thankful! Minerals in the saliva can cause plaque to build up even if you brush like you should and don't eat anything by mouth! Crazy stuff.
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| On our way home from the dentist |
So far it has been a good start of the week!
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