It's Friday- yay! We are really looking forward to having a great weekend with family. Tomorrow is also our 6th wedding anniversary! Time has really flown by. We are so thankful for our two beautiful children and staying true to our wedding vows- for better or for worse, in sickness and in health...
And now these three remain: faith, hope and love. But the greatest of these is love.
1 Corinthians 13:13
To say our marriage has been tested, is an understatement. Mountains of worry, anxiety, stress, grief, and constant demands. It all leaves little time for us as a couple. We have been through so much and in the end it comes down to one thing- we still love each other.
As for how things are going with Kaitlyn, she is here and she is good! Praise be to God!
Kaitlyn has started to have a different type of episode that is more seizure-like. She will get pale and start grinding her teeth. Then within a few seconds, her arms and legs pull in a little and she gets goosebumps. She is breathing through them though which is really, really good! Her oxygen saturation doesn't go down enough to even make the alarm on the pulse/ox go off. You really wouldn't notice that they were happening unless someone pointed it out to you.
They don't really seem to bother her afterwards but I'm sure it takes a lot out of her physically. Because of these episodes, we decided to increase her anti-seizure medication to see if it will help. We are hopeful that we will be able to control her episodes and that she will start to feel more like herself soon!
Hope everyone has a blessed weekend and remembers that the important things in life... aren't things.
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| 6 years ago on in St. Lucia our honeymoon |
And now these three remain: faith, hope and love. But the greatest of these is love.
1 Corinthians 13:13
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| 6 years later (at the NPD Conference) |
To say our marriage has been tested, is an understatement. Mountains of worry, anxiety, stress, grief, and constant demands. It all leaves little time for us as a couple. We have been through so much and in the end it comes down to one thing- we still love each other.
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| Under the sea! |
As for how things are going with Kaitlyn, she is here and she is good! Praise be to God!
 |
| Our men |
Kaitlyn has started to have a different type of episode that is more seizure-like. She will get pale and start grinding her teeth. Then within a few seconds, her arms and legs pull in a little and she gets goosebumps. She is breathing through them though which is really, really good! Her oxygen saturation doesn't go down enough to even make the alarm on the pulse/ox go off. You really wouldn't notice that they were happening unless someone pointed it out to you.
They don't really seem to bother her afterwards but I'm sure it takes a lot out of her physically. Because of these episodes, we decided to increase her anti-seizure medication to see if it will help. We are hopeful that we will be able to control her episodes and that she will start to feel more like herself soon!
Hope everyone has a blessed weekend and remembers that the important things in life... aren't things.
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