Over the course of the day, Kaitlyn's pain has intensified and gotten to a point where we are doing everything and anything we can to help make her feel better.
Late afternoon we noticed that her hands and feet were really cold and her body was really warm. A sign that her heart isn't circulating throughout the entire body like it should. Her heart rate has been on the rise and was over 150 a few times earlier this evening.
We checked her temperature and it was 104 degrees! A cool bath and more pain medicine and she is resting somewhat comfortably now. I say "somewhat" because she occasionally cries out in pain.
We are not asking for a miracle, we know that this disease will take her life, we just don't want her to be in any pain. Please keep her in your thoughts and prayers. She needs them!
Praying for Kaitlyn, you, Chip, Cole and all your family. You have been in my thoughts and prayers daily.
ReplyDeleteStacey
Lord God, I life Kaitlyn up to you in prayer.Please comfort her and hold her close to you to ease the pain. In Your Precious Name,Amen
ReplyDeleteExtra prayers for your sweet daughter as well as for you and your family.
ReplyDeleteWe pray for her and your family daily and will send extra prayers foryou all.
Karen and Kaylee
Tarboro, NC
Sending prayers of peace and comfort for Kaitlyn and your family.
ReplyDeleteSending prayers your way and for her pain to go away and for her to be comfortable and love her way...
ReplyDeleteExtra prayers for comfort for Kaitlyn and prayers sent for you and your husband!
ReplyDeletePraying for all of you. Sending lots of hugs to each of you.
ReplyDeletePrayers of peace and comfort continue for you all....
ReplyDeletePraying that you can keep Kaitlyn comfortable.
ReplyDeletePraying for her pain to ease and Kaitlyn to be comfortable. Praying for strength for your family.
ReplyDeleteNanci & Mike Glassman
We are praying for Kaitlyn to be free of pain and comfortable. We continue to keep Kaitlyn and your entire family in our thoughts. Not a day goes by that we don't think of you.
ReplyDeleteAli and Joe Reardon
I found your blog through a friend of mine who posted on her facebook page. I have been following your blog for a few weeks now. My heart aches knowing that Kaitlyn has to go through this. I think of her often throughout the day and pray for her and your family. Please know that I am praying for God to ease her pain and make her comfortable during this difficult time. I'm still praying for a miracle for her as well. She is such a precious little girl and she has made such a big impact on my life. Thank you for sharing her story with all of us.
ReplyDeleteI am keeping y'all in my prayers!!
ReplyDeletePraying for peace and comfort sweet baby girl.
ReplyDeleteI am praying for her comfort <3 you are all in my thouhgts and prayers
ReplyDeletePraying, praying, praying. Lord please ease Kaitlyn's pain Lord. Please hold and her family so tightly now.
ReplyDeleteLot and lots of prayers for such a sweet baby girl. Her pictures were just beautiful! I'll be thinking of her all through the night!! Hope she has a pain free night filled with wonderful, peaceful dreams!!!
ReplyDeleteDear heavenly father now more then ever I am asking for your precious hands of comfort hold this little angel...lord give her little body pain free comfort.in Jesus precious name.give little kaitlyn comfort and let her feel your presence all around her always..Cindy. Milan,mi
ReplyDeleteThinking and praying for your sweet beautiful girl! I am the Aunt of Trek Atlas and have been following your blog as well. Praying for comfort for your angel.
ReplyDeleteDear Jesus, please help sweet Kaitlyn to feel nothing but love and peace right now. Please take away any pain or suffering that she may be feeling. Please hold her close to You and help her to feel Your perfect comfort. Amen.
ReplyDeleteLittle Kaitlyn is in my prayers tonight as well as your family. God surround them in your love and mercy. Amen
ReplyDeleteI am so sorry, she is in our prayers
ReplyDeleteSending you and your sweet Kaitlyn lots of prayers and thoughts. I hope they find her and you and give some comfort. You are in my thoughts and prayers daily! Meredith
ReplyDeletePraying as God holds Kaitlyn in his loving arms.
ReplyDeleteI pray for Kaitlyn, her family, and those close to her. I hope that her pain subsides and she can live as happily as possible. She is such a gorgeous little girl with so much potential. I wish the best of luck. Much love
ReplyDeleteMy heart breaks for all of you. hold her close and sing to her,
ReplyDeleteI continue to pray for your little angel and your family daily. I pray for God's grace and some solace in this time of need for little Kaitlyn.
ReplyDeleteI found your story today and Kaitlyn - and all of you - will be in my heart always. I pray you know God's grace today and always. Comfort and peace to your precious family.
ReplyDeletePraying in Kansas. Love to you all
ReplyDeleteI have been following your blog through other's who have posted your link on facebook and I've been praying for comfort for Kaitlyn and your whole family. What a beautiful child and beautiful blog you have created so others can be inspired by your strength. Prayers continued tonight and every night...
ReplyDeleteKaryn & Steve Baskette
Godspeed sweet Kaitlyn. Praying for comfort and peace.
ReplyDeleteDear Lord,
ReplyDeletePlease comfort Kaitlyn during this time and help her to only feel the love that her wonderful family fills her days with. I pray for the continued strength and comfort for her parents, family and friends. I can't imagine the strength it takes to walk in their shoes...but I know they are amazing and doing a great job.
In Jesus name I pray, Amen.
So, glad to see that you have close family with you during this hard time. Hang in there mom in dad...I know so much easier said then done. You are doing an amazing job and Cole seems so happy. Glad he can bring light and laughter to your days and nights during such a painful time!
You all are in my prayers. Praying God will ease your precious Kaitlyn's pain.
ReplyDeleteI think of, and pray for sweet Kaitlyn so often. I will go to bed praying for her tonight and will wake up doing the same. May you feel the warmth and love of those around you, near and far, as you comfort Kaitlyn tonight. Kaitlyn's not the only angel in the family. Deanna and Chip, you are too. God Bless.
ReplyDeletepraying to the God who hears all our prayers will bring comfort to Kaitlyn.
ReplyDeletePraying hard for all of you.
ReplyDeleteLove
Sarah cochran
Praying for your baby girl and you the parents. GOD does not make mistakes, I know he will strengthen you in this time of pain. GOD BLESS YOUR FAMILY.
ReplyDeleteWishing your family love, comfort and peace.
ReplyDeletePraying for you all tonight! He gives His beloved sleep...may you all get sweet, peaceful sleep tonight without pain.
ReplyDeleteLots of prayers your way.
ReplyDeleteFather, I lift up Kaitlyn to you and ask that You will give her comfort and rest, and that You will free her small body from pain. Lord Jesus, I lift up her parents, just as Paul commanded, praying in the Spirit on all occasions with all types of prayers and requests. I ask that you will strengthen them with Your strength and give them shalom - Your peace that passes ALL understanding. Calm Your children in the midst of the storm. I pray for the encouragement of these saints. I pray that they will continue to hold on to Your teachings and that others will continue to see that they really are Your disciples. Because Lord we know that when we are Your disciples it is then that we will know the Truth, and the Truth will set us free! Please set many free to spiritual liberation in You through the witness of Chip & Deanna, and through Kaitlyn and her precious life. I pray all of these things in Your precious and Holy Name! Amen.
ReplyDeleteDear Lord, I pray that Kaitlyn feels your arms around her precious body and your comfort can ease her pain in her hour of need. Amen
ReplyDeleteToronto, Canada
I have been reading the blogs daily i have been keeping your family in my prayer all during the day i pray for peace and comfort for your little angel kaitlyn i know got has his arms around her he will take her pain away i pray for peace for the whole family from what i read you seem to be a strong person god is blessing you with the strength to go through this god bless your whole family
ReplyDeleteI watched my mother pass from this life to the next. It was not easy to watch her passing as she to was in pain. I wish for you and your family an easy passing. Losing my mother was the hardest thing I've ever gone through. I can't imagine your pain. Your family is in my prayers.
ReplyDeleteI started reading your blog through a friend on facebook. God nudged me to read your story, so I did. I am not sure how aware you are that Kaitlyn has reached so many hearts and as a mother of three, I look at my children very differently since reading your story. I hug them a little tighter now, say I love you every chance I get, appreciating the sound of their voice when they say my name a million times a day. God had a plan for her, maybe to open our eyes and hearts and love the beautiful things god has blessed us with. To you Kaitlyn I thank you and pray for you every day. May you feel the love of all of us. May you rest comfortably and be free of pain.
ReplyDeleteI pray Kaitlyn will be free of pain and that she will feel nothing but all the love that is surrounding her. Godspeed sweet little angel.
ReplyDeleteI pray Kaitlyn will be free of pain and that she will feel nothing but all the love that is surrounding her. Godspeed sweet little angel.
ReplyDeleteIm praying for that sweet baby girl! Wish I could hug you all! Ill be thinking of her sweet face all night! God give you peace!
ReplyDeleteFaith
Kaitlyn is on my mind every single day and I pray for her every single day also. Lord, please take away her pain and let her rest comfortably. I pray that she feels all of the love that her family has for her and everyone else that she has touched. Please give her family strength and comfort. Amen. Many blessings to all of you.
ReplyDeletePrayers for peace and comfort.
ReplyDeletePraying with all of my heart for God to take away her pain and comfort her. Kaitlyn is an angel ...sent here to touch all of our hearts and make us better people. I look up to you two as parents and respect you so much...I know you are so proud to be her parents....and knowing how many lives she has touched and changed must be so comforting. It's truly amazing how much your little girl has "spoken" to me... as well as thousands. Love and prayers to you all...God has her close, he will comfort her.
ReplyDeleteYou and your beautiful little girl has changed my life. I strive to be a better mother since reading about your journey and have a new relationship with God over the past few weeks. I am praying for your family and that Kaitlyn not be in pain. Love to you all from someone you've never met.
ReplyDeleteI pray for Kaitlyn and the rest of the family several times daily. I can't imagine the sadness and hurt you are feeling seeing her in pain. I know that God has plans for this special little angel. Look at how many people you have already reached! I lost my father 20 years ago after a long and very painful illness. I can honestly say that along with my sadness, I also felt a great relief knowing he was no longer in pain. I will keep thinking of Kaitlyn and the rest of the family, and hope words from strangers like me can give you some comfort and peace.
ReplyDeleteI have been reading your blog through a friends posting on Facebook. Kaitlyn and your family have touched my life in such a profound way. She and your entire family are in my thoughts and prayers daily.
ReplyDeleteI pray that God takes away her pain. I know as a parent, the helplessness you must feel. She is an absolutely beautiful little angel!! We will be praying for Kaitlyn as well your family.....that you all be given comfort through this very hard time.
ReplyDeleteI prayed fervently for Kaitlyn when I read this posting. God is so evident in your lives. I can't imagine how you could get through something do difficult without Him. I have a 2 1/2 year old little girl as well who loves listening to the VeggieTales song "Precious Girl". Everytime I hear it I think of Kaitlyn. There is a line in the song that says "The lives you touched, you're worth so much and that is just how God made you" truly reflects sweet Kaitlyn's life. You are right, that God made her with a wonderful purpose in mind. I thank God for your precious angel!!! May Jesus' loving arms wrap you up with love and comfort.
ReplyDeleteContinually praying for her to be pain free and peaceful !!!
ReplyDeleteI am praying that Kaitlyn's pain has eased and that she is now resting comfortably surrounded by the love of her family.
ReplyDeleteMy heart is hurting so deeply so I hope it is absorbing the pain Kaitlyn is feeling and the pain you are experiencing. God Bless you.
ReplyDeleteLinda Dietz
You are all in my thoughts and prayers. "Meeting" your family and Kaitlyn here has changed me for the better. I wish her relief from pain and I wish you love love love. I know you have that love all around you.
ReplyDeletePrayers going up for this beautiful child. God please comfort Kaitlyn and give her comfort, Amen!
ReplyDeletePrecious Lord, our hearts are breaking. We pled for relief from pain for Kaitlyn. Place your loving hands on her body and cause her pain to subside. We ask for your comfort and peace for her family. Lord something like this so hard to understand. We know that you are sovereign so we trust that everything is working out for good. Kaitlyn has been able to show how you comfort and give peace in horrible situations. She has touched so many with her life. We now leave her in your care and keeping. In Jesus, Amen.
ReplyDeleteSending tons and tons of thoughts & prayers your way from Gaithersburg, MD!
ReplyDeleteGive us faith to be strong
ReplyDeleteFather, we are so weak
Our bodies are fragile and weary
As we stagger and stumble to walk where you lead
Give us faith to be strong
Give us faith to be strong
Give us strength to be faithful
This life is not long, but it's hard
Give us grace to go on
Make us willing and able
Lord, give us faith to be strong
Give us peace when we're torn
Mend us up when we break
This flesh can be wounded and shaking
When there's much too much trouble for one heart to take
Give us peace when we're torn
Give us faith to be strong
Give us strength to be faithful
This life is not long, but it's hard
Give us grace to go on
Make us willing and able
Lord, give us faith to be strong
Give us hearts to find hope
Father, we cannot see
How the sorrow we feel can bring freedom
And as hard as we try, Lord, it's hard to believe
So, give us hearts to find hope
Give us faith to be strong
Give us strength to be faithful
This life is not long, but it's hard
Give us grace to go on
Make us willing and able
Lord, give us faith to be strong
Give us peace when we're torn
Give us faith, faith to be strong
Song by Andrew Peterson
May the Lord wrap her safely in His arms, forever free from pain. God bless you and your family.
ReplyDeletePraying for sweet Kaitlyn
ReplyDeleteI'm sorry! I am thinking if you all!
ReplyDeleteI "met" you all through a friend on facebook and have been forever changed. I have a daughter just months older than Kaitlyn and I cannot even being to imagine what you must be going through. Because you found the strength to share Kaitlyn's story I have found the strength to be a better mother. May Jesus hold your family close and lift away Kaitlyn's pain.
ReplyDeleteGod Bless you, Sweet Kaitlyn! May he ease your pain and hold you in His arms forever!!! YOU are loved! Prayers for strength and peace to your family as well, Little Lady!!!
ReplyDeleteI was introduced to this blog by a co-worker who went to school with Chip. Your strength is beyond measure. I have a 1 year old son and, because of your story, I am more greatful for the time I get to spend with him. Thank you for sharing your journey and reminding us all of how delicate life can be.
ReplyDeleteGod be with you sweet Kaitlyn. I am so proud of you for fighting so hard. There are many, many people praying for you and your family right now. You are truly a blessed little girl to have parents, family, and friends who love you so very much. I know you can feel how much they love you. I love you and you don't even know me! I promise to be a better mommy to my sweet angels. I promise to never take this life for granted, to hug them as often as I can and tell them how much I love them every, single day. You have helped me realize how precious life is and how important it is to love one another fully and completely. God gave you the best parents sweet girl. Thank you for showing me what true love is and what it means to have a faith that passes all understanding. Love you sweet angel.
ReplyDeleteI have been thinking of your family and praying for you everyday since I first started reading your blog over a month ago. Like so many others, your daughter has really changed my perspective on life and I hug my 1 yr old daughter so much tighter now. There really aren't words to convey how I feel but I wish I could give you a giant hug and hold your hand as you go thru this difficult time. You will remain in my daily prayers.
ReplyDeleteLots and lots of prayers from Grapevine, Texas!!
ReplyDeleteMy heart breaks for sweet little Kaitlyn and her family. Praying for God to keep her out of pain and for her to feel peace and His sweet presence with her. Praying for God to give you and all of your family peace, comfort and strength that can only come from Him.
ReplyDeletenot a day goes by that i dont think of Kaitlyn...her story is truly heartbreaking...i cry daily and pray for her to be peaceful and pain free...her story has honestly made me a better mother..i know i hug my children tighter and laugh louder with them..Kaitlyn is such a beautiful little angel and i really love her
ReplyDeletesending love and prayers for Kaitlyn and your family
-indian trail native
My thoughts and prayers are with you and your precious baby girl. My heart aches for you and your family having to see her in pain. Please know that people everywhere are praying.
ReplyDeleteMy prayers and love of God's grace and peace are sent to your sweet family every minute of every day.
ReplyDeletePraying for this beautiful child and her family to know peace and comfort NOT pain.
ReplyDeleteDeanna,
ReplyDeletePraying for the angel's of God to surround Kaitlyn's journey and shield her body from pain. Praying for you, Chip, Cole, all of the grandparents and other family and friends as well. May peace fill your household... thank you for allowing my family's lives to be forever impacted by your baby girl and the journey that you all share together. I send you love and heartfelt prayers.
You will always be in my thoughts,
Misti
I also saw a request for prayer from my friend's daughter, who is a friend of yours. (Annie Huls) I felt a heavy heart as I read your blog! I will most definitely put your families name by my bed and pray! I am so sorry! May you feel God's blessings! Love and Hugs from Ames, Iowa!! Your daughter is beautiful, and so blessed to have such loving parents! Remember that Jesus is right beside you and beside her!
ReplyDeleteI am praying now as I type this for you and Kaitlyn,your husband and yhour whole family.You all are truly amazing family.Sweet Jesus ,please ease her pain and the pain of her family.Kaitlyn is lucky to have all of you with her and loving her.I have never been good with words but my heart truly aches for all of you.,and I wish a miracle.
ReplyDeleteSENDING PRAYERS YOUR WAY.... MY GOD GRANT YOU GUYS PEACE IN THE MIST THROUGH IT ALL....
ReplyDeletePrayers from SC..... Lord Jesus comfort Kaitlyn and her family....give them strength when they need it Lord and endurance for the days ahead but most of all remove the pain and suffering. Precious Kaitlyn you have touched many hearts.
ReplyDeleteI have been following your story for over a month. My heart breaks for you. I , too, have learned from your precious angel. To love more, play more, and enjoy more. We never know when it may be our call of duty to serve God. May you find comfort and may your blessing rest in peace. Love from a mommy of two little girls in Illinois.
ReplyDeleteOur family in Dallas is saying extra prayers for yours tonight.
ReplyDeleteMy thoughts all threw the day are on how is this sweet little angel doing.I wake in the middle of the nite.check to see how she is Diing all threw the day.precious precious lord wrap your loving unconditional loving arms around little kaitlyn.let her feel total peace.and all the presence of heaven around her.where there is no sickness,no pain,no suffering,no families saying goodbye.just pure love from you heavenly father..and a presence like no other..bless the entire family dear lord.Cindy. Milan,Michigan
ReplyDeleteWe are praying for no pain for your sweet daughter who has touched so many people she doesn't even know. We are also praying for peace for your family.
ReplyDeleteThanks for inviting me to your blog. My family will have your entire family in our prayers always.
ReplyDeleteDwan + Dominic Montgomery