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Thursday, March 22, 2012

All Done


Our sweet girl is now an angel. She passed away today, March 22nd, 2012 at 12:34pm.

Chip and I were with Stephanie, RN with hospice going through our normal routine check-up on how things are going and discussing medications, etc. She was asleep with us right by her. All of a sudden she just stopped breathing. No gasping, no crying, nothing. It was the best way for her to move on. I couldn't have asked for anything better for Kaitlyn.

We held her, said prayers, told her how much we love her and how proud we are of her and laid next to her until the funeral home arrived to pick her up. Chip carried her in a pink blanket with the blue and white bow still on her head to their van.

We are thankful that Kaitlyn is free from her body and can do all the things now that she couldn't do here on Earth. We are devastated by her loss but we know that she made a huge impact on many people's hearts and lives.

She will be taken to Levine Children's Hospital to have small samples taken from her body to be sent up to the Niemann-Pick Disease Center at Mount Sinai School of Medicine to further research on Niemann-Pick Disease, Type A.

We will post details of the visitation and service once they are arranged.

In lieu of flowers, please donate to the Niemann-Pick Disease Foundation in memory of Kaitlyn Bourgeault, Type A. Click here to donate.

323 comments:

  1. What a remarkable journey.

    How fortunate we all are to have Kaitlyn and the rest of the Bourgeault family touch our lives the way they have.

    Thank you.

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    1. Thank you for sharing her with all of us. xoxo

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  2. What a beautiful angel she is!! I'm so very sorry and yet so very grateful to have been touched by her. We are forever blessed. Love you, Christine

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  3. I am so sorry, but I am so happy that she is now free. I am so thankful that she passed so peacefully and that you were with her. I so wish I could give you all a great big hug. Kaitlyn has touched so many lives and made such a huge impact on lots of people, including me. I am a better person and a better mother for having known her through your blog. Thank you for sharing all of this with all of us. You and your family will continue to be in our prayers.

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  4. I am so sorry but she is can now play and be free of the pain. Thanks for the update even though it is very sad. But she went peacefully and in the comfort of so much love. I knew this time would come and I still don't believe it. But now you can play with your balloons sweet girl. And because of an email with your Mommy every butterfly I will ever see I will always think of Kaitlyn Kay!! You are free now of the pain my little angel. I love you so much!!!

    Penny

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  5. I just ran across a post on facebook from a friend about your sweet angel. I knew nothing of her until 10 minutes ago. I'm in tears right now. She is such a beautiful angel. It hits home too. I'm due to have a baby girl in 2 Weeks. We are naming her Katelyn Grace. You will be in my prayers. I can't imagine what you have been through. At least she is with Jesus now.

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  6. Such a sweet little angel...I'm so sorry and yet thankful that this sweet girl is not in pain anymore. God bless you all and may He hold you in your arms.

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  7. Thank you for sharing Kaitlyn with us. It has changed my life. Prayers for you to be strong as Kaitlyn would want you to be

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  8. God has a new very special angel. So sorry for you. I know you will miss her so much.

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  9. May God comfort you now. Until you see Kaitlyn again, you have a special Angel watching over you from Heaven. You did the very best for Kaitlyn.

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  10. Leaving her tiny body & getting to run free of sickness!! Tiny wings for a tiny angel!! Can you imagine her smiles & giggles now?! What a beautiful journey!! Sending my love & support for your family

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  11. What a beautiful ANGEL you now have watching over all of you .... she was a fighter, and a true blessing ... Im thankful for your daily blogs ~ its made me a better person, and a better mom ... I know this was expected, but nonetheless, not any less painful...so when you miss her, look up and know she's smiling down on all of you!!! xo
    Michelle Schaffer

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  12. My heart is breaking for your family right now. There are just not any words to express my sadness for your family during this time. You are in my thoughts and in my prayers. I pray God will wrap His arms around your family and provide you comfort during this time.

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  13. Reading this, weeping tears of sadness and joy all at the same time. Praise the Lord, sweet Kaitlyn is home! I bet Jesus held her on His lap, gave her a huge hug, and said "Well done!!"

    Thank you so much for sharing your story and truth with us. We are lifting you up in prayer and will continue to do so. Sending so much love and many blessings...

    Aimee

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  14. I just found out about Kaitlyn today. I'm praying for you family and am glad that Kaitlyn is now with Jesus, laughing and smiling that beautiful smile of hers. God bless!
    -Someone

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  15. godbless you, i live with a genetic disorder as well but not of this magnitude, my prayers to you as well

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  16. Love to all. We rejoice knowing she is in heaven spreading her beautiful sparkly wings, but grieve for the short time with her. You will continue to be in our prayers!
    Emily

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  17. A friend posted this link on facebook, and as a mother, I wanted to come by and tell you how my heart aches for you. Your beautiful little girl has flown away to Jesus, but I know it must leave a gaping hole in your hearts and lives. I will be praying that you find the strength and peace you need to get through this time.

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  18. Godspeed, Kaitlyn. Thank you for changing my life by sharing her, Deanna and Chip. I am so, so sorry for your loss. I will never for get you or Kaitlyn.

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  19. Prayers continue to be lifted up to you and your family. Your sweet baby girl is now free from the illness that has bound her body and her sweet spirit is now able to spread its wings farther than ever--although that is kind of hard to believe knowing how many lives her young life touched here on earth. We love you Kaitlyn and will continue to surround your parents and little brother with our prayers and love! Chip and Deanna, you will forever be an inspiration to me in raising my own child. May God bless you and surround you with His love and grace and peace.

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  20. I am so sorry. You guys have been in my prayers every single day. You truly are an amazing family. Love to all.

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  21. Rest in peace little angel!

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  22. Deanna, your family is in my prayers.

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  23. Oh Deanna and Chip, others have said everything. I weep and I sing! She has been made new! Jesus has wrapped his arms around her and welcomed her home. Prayers for comfort come your way today. What beautiful parents you are. You are loved. We all are here for you, praying and loving you. Thank you for sharing your lives and your beautiful girl with us!

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  24. I am so, so sorry. I remember giving our baby daughter to the nurse to take to the funeral home and how absolutely awful it was. There are no words. I am keeping your family in our prayers and will continue to do so in the days, weeks, and years ahead. Kaitlyn has touched so many people! She is a beautiful girl and was so blessed with wonderful parents.

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  25. So sorry for your loss. Our thoughts & prayers are with all of you today. God has gained a very special angel! :)

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  26. Your family is in our prayers. We live in your neighborhood and think of you all daily.

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  27. I am so sorry for your lose. Kaitlyn was an incrediable child who touched my heart. I began to cry when I saw she had passed but she faught a big fight. I know she will be your guardian angel from up above. Once again, thank you for sharing your story. God bless you.

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  28. Heaven has gained another angel. I'm glad that Kaitlyn is free of pain and that she can now do even more than she was able to do here on earth. I'm sorry that with the freedom for her, comes pain for those left behind. I continue to pray for your family.

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  29. Praise God for such a peaceful journey to Heaven. Praise him for allowing you the time to say goodbye. I am so very sorry for your loss, but so very happy that she is an Angel watching over all of us. Thank you for sharing her with all of us. I am forever grateful for your story. I pray that the relationship you have built with so many of us does not end because she has left this life, but that we may all keep in contact with you. We love you. Your Family In Christ. Amy, John, Alexis and Aubriana Barrett - Gainesville, VA

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  30. God bless you all as He receives back the precious gift He allowed us all to borrow for just a little while... how my heart bleeds for you .... as I read you post today I found it really hard to breathe.... as a grandmother of 13 precious babies I can't even imagine your pain... we will continue to hold you all up to God for His comfort and love ... thank you for sharinng your journey with us... somehow I feel a little closer to heaven too....

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  31. Peace to Kaitlyn and to all of you.

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  32. I can't imagine your flood of emotions as you mourn and rejoice for precious Kaitlyn. Thank you so much for sharing your angel with us. She will forever be a part of my life as I continue to tell others of her amazing spirit and the disease she brought to all our attention. God bless you, Chip, Cole and angel Kaitlyn. I am certainly blessed to have found your family.

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  33. Thank you so much for sharing your angel and this experience with us. I pray you will be blessed because of it.

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  34. I have just recently started reading your blog. Your faith and love for your family has been truly inspirational. Thank you for allowing us to follow your journey. I hope that you continue on with this blog and continue to share your faith with us. Sending prayers your way... ~Lyndsay - Boone, NC.

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  35. How touching to echo Kaitlyn's words, "All Done." I am so sorry for you all, but so happy for Kaitlyn. I continue to pray for you all because the coming days will be difficult. I know you do not know me, but I can honestly tell you that I love you and I love Kaitlyn.

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  36. May Kaitlyn's angel wings raise her to Heaven where she will be free of pain and suffering. I can only imagine how impossibly difficult it is to say goodbye to one's child. You are both wonderful parents and gave Kaitlyn a loving, caring and Christian home to enjoy during her time on earth. Blessings to you and Cole as you cherish the sweet memories in the days ahead.
    Peggy Hughes (JRT)

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  37. So very sorry to have read this. Thank you for sharing your journey with all of us. Kaitlyn was a beautiful little fighter and will still do so in Heaven. Strength to your family. God Bless.

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  38. Godspeed, Miss Kaitlyn! I will never, ever forget you. I now have my very own Guardian Angel up in Heaven watching over my family and I. You are, and always will be, my Hero. Chip and Deanna, thank you for allowing us all to get to know, appreciate and LOVE Miss Kaitlyn. She will live on in all our hearts and minds. I wish you comfort, healing, and love.

    Respectfully,

    Paul

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  39. You will all continue to be in my heart and prayers. What a journey you have had. I will pray that God stay with you on the journey ahead as your family adjusts to a new normal. Kaitlyn will be at heaven's gate when you all get there one day. I am so thankful that even though I don't know you all, I gained insight into what it means to love and trust God completely. My family is honored to make a donation in memory of your precious daughter.

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  40. Thank you for sharing your journey. I'm very sorry for your loss. Kaitlyn was a beautiful little girl. I love how you say that you are thankful that she is free from her body so she can do the things she couldn't do here on earth.

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  41. God saw you getting tired and a cure was not to be. So He put His arms around you and whispered “come to me.” With tearful eyes we watched you, and saw you pass away. Although we loved you dearly, we could not make you stay. A golden heart stopped beating, hard working hands at rest. God broke our hearts to prove to us, He only takes the best. - An Irish Prayer
    God Bless

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  42. Godspeed, sweet Kaitlyn. All blessings of peace and love to your family left behind.

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  43. God loaned her to us for a while.
    She blessed us with her love and smiles.
    She touch so many with her life.
    Now she's free from pain and strife.

    She's free now to run and play
    There in Heavens eternal day.
    Because of God's mercy and grace.
    Kaitlyn is seeing Him face to face.

    She took a part of our heart when she left.
    We trust that our Lord knows best.
    Someday we'll rejoin her her new home.
    Until then we know she's never alone.

    Your family is beig lifted in prayer. Thanks for sharing your precious child. I'll never forget her. Judy Farrar, friend of Mary Hogsed.

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  44. I heard the news about Kaitlyn and burst into tears. Then I read this post and felt such peace coming through your words. This family has been used by God to fulfill his service and all I can say is "Well done. All of you." I am truly blessed and thankful that God put all of you in my path and has strengthened my faith. Rest peacefully Kaitlyn!

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  45. I will continue to pray for your family just as I prayed for your beautiful Kaitlyn. She is free to run and do all the things a little princess should be doing. She IS a beautiful angel!

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  46. Fly to Jesus,
    Fly to Jesus,
    Fly to Jesus,
    and live.
    God bless you family. I can't even begin to imagine what you have been and are going through. Thank you for sharing Kaitlyn with us. Hold on tight to our Lord....it will be the only way through this.

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  47. Jaye (a friend of Kim Hoffman Archer)March 22, 2012 at 3:40 PM

    I'm so sorry for your loss. One thing in particular struck me, and it's that you are sending part of her body to the school. What an amazing gift you've given to science. I realize you had time to plan, but still, I'm in awe by your grace. My deepest condolences. You've done an incredible job as parents, I'm sure. She was lucky to have you, and you were lucky to have her.

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  48. Should read Someday we'll rejoin her in her new home.

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  49. Another Angel has her wings today. May your family find peace and in time have the ability to celebrate her truly remarkable life. Having lost a child I understand the total devastation and loss you are feeling today. Your family remains in our thoughts and prayers.

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  50. A friend posted your blog on facebook yesterday so I haven't followed for a long time but Kaitlyn was truely your living angel. Can you imagine the nice, big, beautiful bow that God has for her! I'm praying for your family and your peace. Just think, in what will be minutes, maybe hours to her, she will turn around happy and healthy and greet you when you make your trip to Heaven! God Bless,
    Barbara from Texas!

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  51. May God wrap you in His arms during this time of need. I can only imagine the pain that your family is going through. Just remember that she will always be looking down on you. She has her WINGS now. RIP SWEET ANGEL!!! <3 **JESS**

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  52. Praying for you and your family during this time. How wonderful to know that Kaitlyn in the arms of the Lord at this very second! She was an amazing little girl! You and your family are such an amazing testimony of the Lord and His faithfullness to provide comfort and peace. Thank you for sharing your story. God bless!

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  53. I've been following for several months now here in Costa Rica. I am so sorry for you but so so happy for your baby girl who no longer struggles to breathe and live. May God give you peace and comfort in the coming days and weeks and years.

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  54. Deanna, Chip and Cole - I am so very sorry for your loss. Kaitlyn has touched the lives of so many, she will never be forgotten. Heaven is having a party right now getting to know the beautiful princess. She’s laughing, running, playing and most of all your little angel is watching over you guys until you meet again. My thoughts and prayers are with you all. Keep your faith and stay strong, God will give you the strength you need to get through this devastating loss. Sending hugs and love to you all.

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  55. I'm so sorry for your loss. Thank you for being so brave and sharing your story with us. Thinking of your family and wishing you comfort in this difficult time.

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  56. Sleep in Heavenly peace sweet angel. How amazing it must be to be in Jesus' arms right now. You are free baby girl. Love you and can't wait to meet you in Heaven. All my love.

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  57. I do not know you and have never posted, but wanted you to know your family has been in my thoughts and prayers. Kaitlyn lives on everyday in my family, as it seems in so many others as well. She has taught us all to cherish the small things and find more time to spend with each other. There will be a great welcome party today in heaven for her!

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  58. Prayers to you and your family. Kaitlyn's life story and your faith has been a reminder for how we should live our lives.

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  59. My hearts aches for you all and yet there is a peace knowing that your sweet daughter is no longer in pain. May you find comfort in knowing how many people have been touched by your story and your strength. God bless you today, tomorrow and everyday...

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  60. I am so sorry for your loss, and yet grateful that Kaitlyn is now happy and free. Thank you for letting me be part of your family through this blog and for letting me get to know your beautiful baby girl. It's amazing how a tiny little person that I have never met has so profoundly changed my life. May God's grace be upon you and may you feel Kaitlyn smiling down on you until you can be with her again. With love and prayers from Alexandria, VA

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  61. We were blessed to witness your family's grace...Kaitlyn is no doubt sitting on Jesus' lap having a wondrous time..God bless you all!

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  62. It sounds like a cliche to say that she's in a better place, but it's the truth. All of the pain and difficulty you've so eloquently documented here is over and will never touch her ever again. All that's left for her now is love and happiness and beauty. All that's left for those who remain behind are memories of this wonderful child. Take care.

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  63. Deanna, Chip & Cole, we are so sorry to hear of Kaitlyn's passing but rejoice with you that she is no longer feeling any pain or in any suffering. She is free. May God bless you in the days, weeks and months to come.
    Melissa

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  64. I just saw your beautiful little girl on facebook a couple of minutes ago and read about her journey to heaven a short time ago....what a sweet angel....God Bless you all and this precious little one now in God's hands......

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  65. So very sorry for your loss. More heartache than I can imagine. i pray for you and your family as your mourn your loss and also pray that God will continue to give His peace...that passes understanding to all of you.

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  66. my heart is heavy for your family today, but i am relieved that kaitlyn is free from any pain or suffering she may have endured. thank you for sharing kaitlyn's and your journey with us. my perspective about my own children has been impacted greatly by kaitlyn's journey and your family's strength. kaitlyn is finally resting.

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  67. Many prayers for your entire family

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  68. We are so sorry for your loss, but rejoice with you at Kaitlyn's now full, miraculous recovery! She is running, jumping, happy, laughing, and smiling...all with your love in her heart, and Jesus has her by the hand.

    God bless all of you in the days to come, and may He grant you the peace that passes all understanding.

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  69. Tai (Springtown tx)March 22, 2012 at 3:52 PM

    I am so sorry for you loss. I can't even imagine how you are feeling but at peace that she is no longer suffering. She has made such an impact in my life and how I look at life an my kids.
    I pray for you family during this difficult time and I will never forget her even though I have never met her or your family.

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  70. So sorry to hear of your loss, but we are blessed to know that she is running in the gardens of heaven now. One day I hope to meet her myself! You are such Godly parents and have set an example to us all of what he expects of us. May your hearts be lifted by the love of so many.....
    The Shaddix Family
    Ohatchee, AL

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  71. I'm so sorry for your loss. Your family's strength and courage is incredible. May God be with you and comfort you.

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  72. oh- I don't even know what to say. I am so sorry for your loss, but am so thankful your sweet girl went peacefully and that you were both with her. Sending you all lots of love and prayers.

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  73. I found your blog 2 weeks ago from a friend and haven't stopped thinking of you. Every day since I've given thanks for the time I have with my own 2 girls. Much love to you, your family and Kaitlyn. May she rest in peace.

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  74. Deanna and Chip, I just want you to know that I was driving home a little while ago and while at a stoplight, I looked up at the clouds. Right in front of me was a cloud shaped like a kneeling angel with her head bowed and hands together in prayer. I immediately thought about sweet Kaitlyn. I am just now reading that she has passed on from this life and is an angel with Jesus now. I think God allowed me to see that cloed formation so that I could share it with you during this difficult time. I have been, and will continue, to pray for your family.

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  75. We are so sorry for your loss. My God's grace and strength overshadow your family. Thank you for sharing Kaitlyn's story and allowing us the privilege of getting to know your wonderful family. Y'all will continue to be in our prayers.

    Debbie & Daryl Johnson

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  76. I am so sorry. RIP sweet Kaitlyn, fly high with the angels, you truly are a special one <3

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  77. God gained a sweet angel today. She will live forever in God's Kingdom free from her worldly troubles. She will watch over you until you are reunited in Heaven when your job on earth is done. Sorry to hear of your loss, you have touched so many lives. God Bless!

    Sarah Messer

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  78. I am so sorry for your loss But know that she is with GOD and is happy. You will see her again. Until then prayers are said for your family. May GOD BLESS AND KEEP YOUR ENTIRE FAMILY.

    Judi Wall
    Ga.

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  79. Prayers, prayers and more prayers for you all. I know you are glad that she is free from her illness and will suffer no more, but I know the loss of your sweet angel is almost unbearable. May God continue to hold you tightly in His loving care as you go through this time time! Diane

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  80. I am so sorry for your loss. I know Kaitlyn is in the presence of God,and is totally healed. You and your family are a true reflection of Christ's love. I am praying for you and your family.

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  81. I am so incredibly sorry for your loss. So very sorry. May your precious little one soar among the angels.

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  82. Your family remains in my thoughts and prayers.

    Thank you Kaitlyn for sharing your journey with me. God Bless you.

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  83. Rest In Paradise sweet Angel! Many hugs, much love, and continued prayers! And thank you all for giving me the opputunity to meet such a wonderful family!! <3

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  84. My husband and I were introduced to your blog a week ago. Kaitlyn and her family have been in our prayers daily, and the prayers will not stop here. You are wonderful parents and gave her so much love and support- she was truly a lucky girl to have you as her parents. Kaitlyn was a strong, beautiful and courageous little girl who taught me so much in just one week. I hug my daighter just a little longer and a little tighter every day. I am in the process of reading past blogposts and am grateful that you have shared your story with me. You are both beautiful writers and it's a wonderful thing that you've captured your thoughts and pictured over the past year! We are so sorry for your loss today. Our thoughts and prayers will remain with you and your family.

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  85. I am so extremely sorry for your loss! I will never forget Kaitlyn and your amazing journey! You have changed my life forever! So happy she went peacefully and without pain surrounded by the most wonderful parents a child could ask for! She fought an amazing battle! Much love to the entire family during this difficult time from MA!!

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  86. I am so sorry for your loss. What a beautiful girl your Kaitlyn was and what a beautiful family you all are. Sending you many prayers...

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  87. How blessed we all are to have been touched and forever changed by this remarkable little girl and her family. Thank you, Deanna and Chip and all of Kaitlyn's family, for recognizing how much we all needed to hear and experience her story. Kaitlyn's light shines in each of us. God bless and comfort all of you.

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  88. It still amazes me how one little girl can touch the hearts of so many! What a a blessing she was to all of us that followed her journey. Thank you sweet Kaitlyn for reminding me how precious this life is and not to take one second for granted. GOD Bless

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  89. I am so sorry for you loss. My thoughts and prayers are with your family.

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  90. My thoughts are with you and your family. My friends' have 2 children that suffer from the same illness, and as I've told them, I admire your strength, your courage and your soaring love for your beautiful baby. She will not be forgotten.

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  91. Sweet Angel Kaitlyn, I am a better person and a better mother because of you. Thank you. My heart is broken for your family, but I am relieved for Kaitlyn to be free of her Earthly body. She is in Heaven now running and playing and giggling. She will be forever young and will greet you at Heaven's gate with those sparkling blue eyes and beautiful curls trailing behind her. I have been and will continue to pray for you and Chip as you face the difficult days ahead. Your family has endured so much with such Faith and Grace. I am honored that you have shared this blog with so me and with so many. Thank you. God bless you.

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  92. Forever in our hearts baby girl. Deanna and Chip ... All our love is with you right now. Xxxooo Steven. Shannon. Wylder

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  93. I cried when I read she had passed.your all in my thoughts abd prayers .lots of love during this time .thanks for sharing Kaitlyn"s story.

    Kristy

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  94. What an amazing little girl she was and now she is a Beautiful Angel. God Bless all of you!

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  95. God knew what he was doing when he placed her in your arms. She could not have had a better family surrounding her during her life. I pray that your transition into this 'quiet' life these coming weeks will be easy on you and Chip.

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  96. We pray for our children to be safe. She is safe in the arms of Jesus. We pray for our children to be happy. She delights in the wonders of heaven.
    We pray for our children to be well. She is completely and forever healed. We prayed for a miracle. It is called Everlasting Life.

    Oh, God, hear our prayers of gratitude for precious Kaitlyn and all she meant to her family, and for the message her story left in each of our hearts. Please comfort Deanna and Chip, and their extended family, with peace that passes understanding! And when you shall meet her again, surely your heavenly Father will say to you, "Well done!" for your selfless love and care or her and your witness to so many of us. I will continue fervent prayers for God's comfort for all of you and for His peace that passes understanding. I am so very sorry!

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  97. God Bless you all. You are the most wonderful parents ever. Thank you for sharing your beautiful angel with us. I am forever blessed to have known this strong, courageous girl and her loving parents. I will never forget sweet Kaitlyn Kay.

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  98. Continued prayers for you all and Kaitlyn.

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  99. Chip and Deanna, thank you for sharing your sweet angel with us. Thank you for the purest example of love you have shown to Kaitlyn and the world by sharing her story. My heart is broken for you. Praying for your family.
    The Burdette family
    Harrisburg, NC

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  100. Such a beautiful angel, Kaitlyn Kay! I pray for peace & comfort for you all during this hard time. I'm sure it's beyond devastating, but I can just imagine Kaitlyn looking down on you all and how amazing she feels now:-). May God bless you & provide comfort like only he can give!

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  101. I, like many others, have never met you or your family. I happened to see a post on Facebook directing me to your blog. I have read through your whole journey and I find myself thinking about Kaitlyn throughout my days. Your strength as parents and unending faith in the Lord is SO inspiring. Kaitlyn was so young, but from reading people's comments on your blog, she has touched and changed so many people's lives. I know that there are no words to make this time easier, but hopefully you can take some comfort in knowing that she is free of pain and that you have so many people praying for your whole family- people that you've never met even. I have experienced loss as well- I lost my twins the day they were born. I wish I could say that I had just half of the strength and faith that your family has shown. Your story is inspiring and truly life changing. You all are in my prayers daily and will continue to be in them.

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  102. God bless your family during this difficult time. Thank you for sharing her. What an inspirational family!

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  103. So sorry for your loss. May your special girl rest in peace.

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  104. Your family is in my thoughts & prayers. Kaitlyn is now an angel watching over everyone & now she will be running & playing in heaven. I can't imagine how much pain your heart feels. My heart aches for you & your family but I know you have your son and husband to hug and kiss and comfort. God bless you all

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  105. I am so very sorry for your loss. But I am so glad she went so peacefully. I will continue to keep you all in my prayers.

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  106. I was introduced to Kaitlyn and her wonderful family only a week ago. In that time, I cannot tell you the profound impact you've had on me. My heart has ached for you as I've checked in on your fight throughout my days. I am truly a better person and father for your strength, faith, and courage.

    Thank you Kaitlyn! May you fly free and without the pain from this world.

    Thank you Deanna and Chip for sharing your journey during this difficult time. You are great parents and people. I pray for peace and continued strength for you.

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  107. You do not know me, but I read about your daughter through a friends post on Facebook... I am so sorry for your family's loss and will keep you all in my prayers. I have been reading through your past posts and have truly been inspired by your ability to see the positive moments throughout this difficult journey and to see every moment as a blessing. I pray that other people who have the gift of reading about Kaityln and your family will be reminded to do the same. May God Bless You all during this time.
    Leesburg, Georgia

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  108. Oh, Deanna, Chip and family,
    Presently I can just cry. My heart aches for you and your family. I am just so pleased that so many of the prayers for Kaitlyn were for a painless ending, and God answered our prayers. You and she were loved by so many. I hope that Kaitlyn runs hand in hand with my departed, and when I enter heaven, they greet me at the door. I will give Kaitlyn the biggest hug and kiss ever!! My prayers are now for you as you adjust to a new life and lifestyle .....painlessly. God, hear our prayers.

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  109. Thank you for sharing her with us. She will be with all of us forever.

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  110. So sorry for your loss! Thoughts with you and you're family! Thank you for raising awareness and showing people how far faith can take you!

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  111. Heaven definitely got brighter today. She dancing free and happy now. I feel so honored to have been part of this journey with you even from afar. Because of all of you, my family will never be the same and we are forever grateful.

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  112. God bless all of you.

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  113. I will always be touched by Kaitlyn's journey and your family and their strength! My prayers for peace and comfort are with you. It makes sense that around the time of Kaityn's passing the sky turned from cloudy to sunny...I bet she is lighting up heaven with her laughter and spirit!

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  114. So very sorry for your loss. Kaitlyn is now pain free! Thank you for allowing us to be a part of her life. She will be with us forever. Lifting the family up in prayers. God Bless you and keep you wrapped in his arms.

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  115. Thank you for allowing us on this journey with you. Your family has impacted me more than you know--what an inspiration you have been of strength and faith. My heart aches for you but also is thankful that Kaitlyn is at peace now. I will continue praying for comfort and healing for your beautiful family. Much love!

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  116. I am so sorry for your loss. I often thought of your daughter and your family even though I have never met you. God gave you this beautiful girl for a little while but just couldn't spare her for long. He must have some pretty special plans for her! He definatly picked the most amazing parents he could find for her short time here. I am glad he listened to all of our prayers and took her quickly. May he bless your family and keep you in his arms while you go through this difficult time. Karrie, Maine

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  117. Speechless and in awe of your family. Deanna & Chip, no words can say how I feel for you. The image of Chip taking beautiful Kaitlyn out of the house brings me to my knees. Thank you from the bottom of my heart for allowing us to follow Kaitlyn's journey. <3

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  118. Your beautiful angel walks with God. Sending prayers your way.

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  119. Precious family, my prayer is for God to wrap you in His arms in the days and months ahead and to give you wonderful memories of your precious little one. As Cole grows up I knowed he will be blessed with love and happiness because you shared with us the way every parent should love and care for a child. God bless you and thanks again for sharing Kaitlyn with us!

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  120. So sorry to hear this. Kaitlyn has warmed many hearts, mended many and touched well beyond anyone can understand. She truly is an angel with all she has accomplished. You guys are amazing in your strength. May God grant you peace. Soar high baby girl, God Speed

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  121. Perhaps they are not stars in the sky, but rather openings in Heaven where the love of our loved ones shine down to let us know they are with us. Kaitlyn will be the brightest star of them all! You will all be forever in my heart. Thank you for sharing Kaitlyn with the world. Job "well done" Kaitlyn, well done.

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  122. Glad Kaitlyn is in peace and pain free now. Sending you all hugs and kisses. You family has taught me much about grace and love. May God embrace you with love and comfort during this difficult time.

    Chad and Kim Christianson

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  123. Tears are flowing here right now...Rest in peace sweet angel. Your work here is done now fly free. Chip and Deanna, again I thank you for sharing Kaitlyn with us. She was a beautiful little girl (with beautiful bows) and you two sound like the most caring parents she could have asked for. You gave her a life full of dignity and quality. Your family is in my thoughts.

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  124. To Deanna and Chip from a Farm Friend!
    "God gave the most precious gift to me~ As He did so he whispered so tenderly, "This child I give you is not yours to keep, When I call her Home, please do not weep. For I will take her by the hand, across my bridge of love, Together we will fly to my Golden Gates above, Where she can play in the sand, as soft as a sigh, The sun will always shine on her, in a summer blue sky, Her playmates will be Angels with gossamer wings, Her own spiritual mother, a sweet lullaby sings, I'll welcome home, this child, so precious in my sight, She'll be safe at last, a child of Gods light. So do not grieve when the time comes, she's forever in my care, Behind Heavens Doorway, she'll wait for you there......

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  125. I read this with sadness but happy to have read your blog. Your entries have brought to light NPA and I will forever be touched by what you have shared with all of us. I hope you may find strength during these times and please know that Kaitlyn's story and journey have touched so many.

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  126. Sweet Jesus, thank your for taking our darling Kaitlyn under your caring arms. Now watch over her mommy, daddy, and baby brother until they meet again.
    Deanna and Chip-----you are like no other! Blessings to you.

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  127. So sorry to hear about Kaitlyn, she was such a blessing and I followed her story on facebook. She was such a strong little girl and fought her way to the end. Her story was very touching and inspiring!! She is no longer in pain and she is looking down over he loving parents and little brother who were by her side the whole way. I pray that God gives you peace and strength to get through this loss, and that you continue to look to him for guideance.
    Jason Witmer, Charleston, SC

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  128. With sorrow, sadness and love here in Richmond. You are in my thoughts.

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  129. My God continue to comfort you during this difficult time. I am so sorry for the loss of your sweet baby girl. She changed my life and I never met her. Love and prayers to you all. Grapevine, Texas.

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  130. Kaitlyn is running and playing with all of the Angels. She is talking and telling them all what wonderful parents she have and how much she loves them. God bless that sweet angel.

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  131. So sorry about your loss..May God bring comforts to u and family....

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  132. As a mother I know that the loss of a child no matter the circumstance is truly devastating...My thoughts and prayers are with your family and hope that you all hang on to the love of Jesus throughout this most difficult time. She is a precious Angel now. I want to thank you for sharing Kaitlyn's journey with us....the good and the bad. You have allowed Kaiytlyn to touch so many lives and we all truly love her. God Bless Deanna and Chip and God speed Kaitlyn.

    Tanya

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  133. Kaitlyn, I will NEVER forget you. You have touched my life and my heart in so many ways I could never thank you enough for. I hope to be lucky enough to meet you one day in Heaven.

    Deanna and Chip, I can not imagine the pain you are feeling right now. As believers, you must be thrilled she is at peace with God now, but as parents you must miss her so much it physically hurts. God knew what he was doing when he chose the two of you to be her parents.

    I will forever think of Kaitlyn running in a field chasing butterflies. Thank you so much for sharing her with me. I am so in love with her! She inspires me to be a better mom and to be thankful for my children. I heart and prayer will always be with your family.

    Love Always,

    Amy Smith

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  134. May peace be with with you.
    - Sara, California

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  135. Heaven has another beautiful and amazing little Angel. As hard it is, know that Kaitlyn's journey on earth has touch so many lives. May God Bless you and your family as you go through this difficult time. My heart aches for you and I will keep you all in my prayers.
    Angela

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  136. Love and peace to you and your family. You are wonderful people and I truly feel for you.

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  137. Rest in Paradise, sweet angel. My sincerest condolences to the family and friends of Kaitlyn. Deanna & Chip, you're tremendous parents and human beings.

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  138. She is a beautiful little angel now, but her memory will carry on forever. My prayers are with you and your family.

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  139. Words cannot even express how my heart aches for you. I've never met you and I never met Kaitlyn, but you all have touched my heart greatly. I can't imagine a better set of parents for that beautiful little girl. This post was so bittersweet for me to read- sad for the obvious reasons, but happy in that her struggle is over and she's now free to run and laugh and play. Your journey with Kaitlyn and the remarkable strength and positivity you've carried yourself with are an inspiration. What I've taken away the most from reading all of your posts is the complete absence of anger, bitterness, or resentment. It has made me want to be a better person and more appreciative of the things I have. Rest in peace sweet baby girl.

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  140. I saw the story of Kaitlyn on a friend's Facebook page. She was such a beautiful little girl. Now she is a beautiful little angel. I am so very sorry for your family's loss. Though I don't have children my heart aches for your family. You will be in my prayers. God bless you and your family. God will protect Kaitlyn's soul now.

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  141. My eyes are filled with tears and my heart hurts for her. And y'all.
    Cary Shelton
    Glen Allen
    (Jessica's Dad)

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  142. https://www.youtube.com/watch?v=v-86VTOuZWQ

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  143. Loving Lord Jesus, please welcome Kaitlynn into your arms. May she rest there, in peace, forever.
    Please also grant her family peace as they grieve her loss.
    Amen. Amen.

    --
    Ben and Kelly Conner
    (P.S. - she likes bows, I'm sure you have some great ones up there - maybe you could let her try one on?)

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  144. Deanna, Chip and Cole-
    You have my deepest sympathies. Kaitlyn was a remarkable little girl. She gave and received more love and inspired more people in her short life than most of us will in our entire lifetime. It was an honor to know Kaitlyn and follow her journey. Our prayers, thoughts and love are with you and your entire family.
    The Lines Family

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  145. I cannot express the sadness I feel right now. I have never met you, Chip or little Kaitlynn but I am praying for all of you right now. As the father of three little girls, this news simply breaks my heart. I wish there was something I could do to provide comfort during this difficult time and know that you will be in my thoughts and prayers. God bless you and your family. Heaven now has a new little angel at its doorsteps.

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  146. I hope you find comfort in knowing she is no longer suffering. Thank you for your bravery in sharing your story with the world. Rest in peace sweet one.

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  147. Thank you Jesus for Kaitlyn and now she can play in the sun. Hold her parents close even as they have great faith in you and need your comfort. In Jesus name, Amen

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  148. "And with your final heartbeat
    Kiss the world goodbye.
    Go in peace and laugh on glory's side.
    And Fly to Jesus,
    Fly to Jesus.
    Fly to Jesus and LIVE."

    Thank you, sweet Kaitlyn, for your Jesus story, courage, and precious life that has touched so many. Dance with Jesus, dear little one, and LIVE.

    In Him,

    Amy Skogerboe

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  149. Deanna, Chip, and Cole, My heart cries for you, but it also rejoices for Kaitlyn. Heaven just got a little sweeter! Thank you so much for allowing me to get to know Kaitlyn during the time I was able to come help you. I look forward to Heaven even more now that she is there. I know her smile and love will light up Heaven even more than it lit us up here on Earth. Jesus loves the little children! Again, I'm so sorry for your loss. Please know that my thoughts are with you.
    Marsha

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  150. My heart breaks for you. You are such an inspiration of faith, patience and love. I pray for you.

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  151. So sorry for your loss. I found your blog recently through a friend on FB and have been praying for your family. May you find comfort in the coming days; Kaitlyn was a beautiful little girl.

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  152. I am crying for you right now. I follow your story everyday and will continue to pray for you and your sweet Kaitlyn. All my love.

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  153. Sweet Kaitlyn, God Bless You!! Thank you for coming into our hearts! Your Mommy and Daddy have been such an inspiration and I am thankful to have known you through words. Thank you for allowing us to be part of your Journey.

    Prayers of love, peace and comfort,

    Gary, Christi, Daniel and Elayna Kreahling

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  154. I remember being privileged enough to hear Kaitlyn say those two words: "All done," and now to see your perfect reiteration of them to express her ascension into peace fills my heart with sorrow, but still love and prayer for Kaitlyn, as well as the family and friends who I know for a fact have had their lives changed by this marvelous angel.

    I have been quietly watching sweet Kaitlyn's journey, sending my support through prayer and thought rather than comments on this blog. I have silently hoped for constant comfort for Kaitlyn for quite some time, but I can stay silent no longer. My support, love, and prayers, as well as those of my family, is now definitely openly present for the Bourgeault family and always will be.

    I must reiterate that Kaitlyn changed lives, and she is in the hearts of each person that was graced to know about her life and journey. Because of this universal love for this sweet angel, she will never truly be gone, but in our hearts forever, for as Emily Dickinson wrote "Unable are the Loved to die, For Love is Immortality."

    My deepest condolences, prayers, and support-

    Chloe Smithson

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  155. Your family is so inspiring. I have been reading your blog and have found so much hope, love, and strength between your words. You gave her such an amazing life that has touched millions and we thank you for sharing your story of love and devotion to your child. She truly is an angel to us all. My thoughts and prayers are with you during this time.

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  156. I have been following your sweet daughter's journey for a couple months after seeing on facebook a friend requesting prayers for all of you. I am so very sorry for your loss but so happy that sweet Kaitlyn is not longer suffering. She is with our dear Lord doing all the things that a little girl does with no more pain, discomfort and suffering. I will continue to keep you all in my thoughts and prayers as you mourn the loss of your sweet angel.

    Dear Lord, Please wrap your arms around this sweet family and help comfort them as they deal with the emotions and feelings of the loss of sweet Kaitlyn. Thank you forgiving her the ability to hang on and fight as long as she did. Thank you for giving her parents the strength, courage, support and love to take care the sweet angel you put in their care. May they continue to get the love, support and encouragement to move on from here with the constant reminder that their angel is in a better place. Amen
    Mary

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  157. I could not help but cry when I saw this. I am so very sorry for your loss. God has gotten a very Beautiful little Angel in his arms now. Kaitlyn is now talking to our Lord and everyone else in Heaven. She will always be in your hearts and she will visit from time to time. Again I am so very sorry for your loss.
    Thank you very much for sharing your blog with us. I enjoyed reading about Kaitlyn everyday. I will miss her as well. I Prayed every night for her and you.
    God be with you in your time of sorrow.

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  158. I know she will have many greeting her, but I sure hope she meets my daughter.

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  159. I'm so sad to hear about Kaitlyn's passing today - I've followed her updates and said prayers for months since I began reading. I know words offer little comfort on such a difficult day, but I still wish I knew a perfect combination to help as much as possible. What a brave little girl, and inspirational fighter. I'm glad to know she's no longer hurting and in a beautiful happy place. My thoughts and prayers are with your family today.

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  160. Among many praying for you for what you have lost. Kaitlyn was absolutely beautiful and how you expressed your heart made those of us that don't personally know you, fall in love with your family and drew us to pray on your behalf. Know that will not stop in the days, months and years to come. Forever changed. Lord please hold this family as you are holding their sweet baby girl.

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  161. I can't even express the impact this precious child has had on so many she could not have asked for better parents to love and cherish her through her journey may God bless your family through this tough time! RIP sweet Kaitlyn!

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  162. God Bless this precious little angel and her family. I know it is hard to say goodbye and I pray that you will find some peace and solace as you rejoice in the life of this special little girl. She has touched the hearts of so many and helped remind us what is really important in this world. There is nothing as sacred as the love between parents and their children and you have shown remarkable love to this wonderful sweetheart. Tonight we are all Kaitlyn's parents and our hearts ache with you, but at the same time they are overflowing with love for this blessed child.

    Mike Stonnell
    Concord

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  163. I have been following through a friend posting on facebook. What a journey you all have been through. Heaven is going to have one beautiful angel in Kaitlyn. Prayers to you all at this time.

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  164. Deanna , chip , and cole, you don't know me, but through your blog I have come to love ur family. I have commented before and have watched ur journey. I am a mother of four and my heart breaks for you guys. I pray that you all heal quickly. Kaitlyn is so beautiful. I appauld how you guys have handled this hard road. What amazing love. God bless kaitlyn and ur family. U guys will always be in my prayers, like I said before... Right beside my family. When u are ready to do ur books to help others, I know they will be amazing and helpful to others. Everything happens for a reason. Sending love, Jeanette from nh

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  165. The Lord is enjoying her sweet self now and she's running and playing. She's at peace. Bless her.

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  166. Kaitlyn has certainly earned her wings. Let her soar high above us. Prayers to your family as you now move on in the next chapter of your journey. Prayers for comfort and support, as Kaitlyn is now at peace.

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  167. My heart is broken. She will be in my heart forever. Peace be with you and your family.

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  168. I am so sad to hear this, but, like you said, glad Kaitlyn is able to now do all the things that she couldn't here on earth. I am sure the angels are rejoicing to be in such lovely company today

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  169. I was introduced to your blog somewhere near the beginning of March, when one of my friends posted a link. I just want you to know, that I was instantly touched by her story, and more importantly, the love your entire family showed her. I was truely inspired by the lasting bond you shared with Kaitlyn, and I know that even now, this bond will not be severed. I have recently gone through a tough loss as well, though I know it is nothing compared to the pain of loosing a child. However, I know she touched many people's lives, and that she will never be forgotten. And you must remember, that now, in Heaven, she is free of pain, and she is in the loving care of our Lord. Everyone in Heaven will take good care of her. I have prayed for your family every night since I first began to read your blog, and the prayers will not stop. I'm truely sorry for your loss.

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  170. "Daddy please don't look so sad, momma please don't cry.
    Cause I'm in the arms of Jesus, and he sings me lullabies.
    Please try not to question God, don't think he is unkind.
    Don't think he sent me to you and then changed his mind.
    You see I'm a special child, I am needed up above.
    I'm the special gift you gave Him, a product of your love.
    I'll always be there with you, so watch the sky at night.
    Look for the brightest star and know that's my halo's brilliant light.
    You'll see me in the morning frost that mists your window pane.
    That's me in the summer showers, I'll be dancing in the rain.
    When you feel a gentle breeze from a gentle wind that blows.
    Know that it's me planting a kiss upon your nose.
    When you see a child playing and your heart feels a tug,
    Don't be sad mommy, that's just me giving your heart a hug.
    So daddy don't looks so sad and momma please don't cry.
    I'm in the arms of Jesus and he sings me lullabies!
    ~Unknown

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  171. God Bless all of you and thank you for sharing Kaitlyn with us. May you feel God's total peace. I'm sad that she is no longer here physically and I will miss her, but am so happy that she is now with her savior. Love, Laurie High

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  172. Oh how my heart is heavy with sadness, but also joy that she is now in heaven with Jesus. We will be praying for you and your family.

    Christy Brown

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  173. Thank you for sharing this difficult journey with all of us. I am so sorry that her time here was so brief, but she has touched so many people from all over the world. You have so many people praying for your family. My heart aches to read this last entry. Peace be with you, Kaitlyn. Peace be with all of you.

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  174. My heart aches for you; but I am so thankful to you for sharing Kaitlyn with us. Grateful that she is now with the angels.

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  175. When Heather Waliga, a reporter and friend from high school, shared this story on facebook, I began following your blog. I am so sorry for your loss. What a special, loved little girl. I know she will be greatly missed by many. My prayers are with your sweet family right now as you go through this difficult time. You are right though. Kaitlyn is now in heaven doing the things her earthly body wouldn't allow. She is running into the arms of Jesus. Love and prayers!

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  176. No words can come close...just, much love and God's peace to your family, and His blessings on precious Kaitlyn.

    "Well done, good and faithful servant". Matt. 25. In her sweet short time here, Kaitlyn made a huge difference.
    Starr Black, Concord

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  177. Thank you so much for sharing your journey with us. Kaitlyn has touched my life and the life of my son. We have continued to pray for you and your family in this journey. I am sorry for your loss but am thanking Jesus for loving Kaitlyn more than any of us ever could.

    Anna Holloway

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  178. So very very sorry for your loss. Thank you for opening up your hearts to us all and allowing Kaitlyn to come into so many of our hearts
    Eileen Davis

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  179. She was just too special to be here on Earth...God had to have her back..she is beautiful and a blessing to so many...what a precious gift she gas given me, and many, many others as a human being..prayers of peace and love go out to your wonderful family.....

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  180. I am so sorry to hear about the loss of Katelyn. When our world was opened to loss, I sadly came across your blog. I have enjoyed welcoming Katelyn into our home and sharing her story with family and friends. I'm sorry that you have to endure the pain of this life without her. I will be praying for comfort and peace in time. -Channan

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  181. I am so greatly sorry for your loss of sweet Kaitlyn.

    She has an amazing story and has touched the hearts of many. Though her life was far too short, please know that she has had a huge impact on all of those we know/have read about her.

    Rest in peace Beautiful Kaitlyn.

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  182. I am so very sorry for your loss. My heart aches for you. Kaitlyn truly touched so many lives and made such an impact. I know she has made an impact on my life. I can't even imagine how hard this is for all of you but I am amazed everyday by your strength and courage. Kaitlyn is a true angel and will always be with you.

    Ali Reardon

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  183. I have been blessed to have gotten to know your family and sweet Kaitlyn through a mutual friend. Your story has changed my perspective on life with my two little girls and trivial things don't matter anymore. My four year old prayed for Kaitlyn often, so sweet, so innocent and so sincere. Kaitlyn has been called home. You as parents have done the very best and have given her so much love. You inspired me. You will continue to be in my thoughts and prayers. I pray for the peace and comfort that can only come through God. Thank you for sharing Kaitlyn with us. Thoughts, prayers and hugs from Bedford, Pennsylvania.

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  184. May Katelyn Rest in Peace. I am so sorry for your loss. No more pain. May God Bless all of you as he holds Katelyn in His loving arms.

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  185. Colleen and TaylorMarch 22, 2012 at 6:56 PM

    We are keeping you and family in our prayers.. Kaitlyn has touched so many hearts.. including ours

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  186. Prayers for the loss of a beautiful, strong and amazing little girl. I came across your blog by a friends post on FB and have been following Kaitlyn's journey. She has touched so many people, including me. This afternoon Heaven gained another Angel. She will now be free to laugh and play all pain free.

    Sending prayers your way.

    AC

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  187. Deanna and Chip.... Kaitlyn has made such an impact in the lives of so many people. Your gift of sharing her journey through your words has touched us all. We are so sad that she is no longer here on earth, but she will be the "brightest star" with her beautiful eyes and smile as she is greeted by all in heaven. Keeping you all in our prayers.

    The Lizotte Family

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  188. Your family is in our prayers and Kaitlyn has truly touched our lives and the lives of so many others. God will take good care of her. God bless.

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  189. My thoughts and prayers are with you all. Heaven gained an amazing little angel today, and she will continue to inspire people here on earth. Im will continue to pray and I look forward to someday meeting kaitlyn in heaven. God bless

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  190. There is nothing I can say that hasn't already been beautifully said. My heart is heavy for you tonight. I once heard someone say that some souls are so special that they can only be on loan to us for a short time before God needs them to return home. Kaitlyn most certainly has an incredibly special soul. She has touched so many lives, mine included. My prayers are with you. God Bless.

    Yours truly,
    Tiffany

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  191. Your family is in my prayers and I hope your amazing little girl has truly found peace. Thank you for being brave enough to share the story of your struggle. I hope this can be a window for a cure.

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  192. I am sorry for your loss. Rest in Peace Kaitlyn.

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  193. My daughter-in-law shared this today. My heart breaks for your loss. I cannot imagine the pain you feel. God bless and may Kaitlyn rest in peace.

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  194. I have been following Kaitlyn's journey and feel honored to have had the opportunity to get to know this beautiful angel of yours. May you find peace in knowing that Kaitlyn is free of pain and dancing among angels. I am truly sorry for your loss.

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  195. Love, hugs, and prayers from KY. Thank you so much for sharing your sweet baby with us. She has touched so many lives...more than you'll ever know. So incredibly sorry for your loss, and all that you have been through....but at the same time, relieved that she is finally free. Fly high baby girl!

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  196. What a sweet, sweet angel to have waiting for you in heaven. No more suffering here on earth... J
    So happy it was, what seemed to be, a peaceful passing. She will never die because she will always live through you.

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  197. These tiny footprints were meant
    for other things.
    You will hear my tiny footprints,
    in the patter of the rain.
    Gentle drops like angel's tears,
    of joy and not from pain.
    You will see my tiny footprints,
    in each butterflies' lazy dance.
    I'll let you know I'm with you,
    if you just give me the chance.
    You will see my tiny footprints,
    in the rustle of the leaves.
    I will whisper names into the wind,
    and call each one that grieves.
    Most of all, these tiny footprints,
    are found on Mommy and Daddy's hearts.
    'Cause even though I'm gone now,
    We'll never truly part."

    My thoughts are with you all. Someday with Kaitlyn's help, there will be a cure for NPD.

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  198. I am so sorry for your loss. I am, however thankfull that Kaitlyn is now in heaven with Jesus, pain free and happy. She is an angel! I continue to pray for your family through this dificult time. You are amazing parents and thank you for sharing Kaitlyn with us.

    You are loved.
    Bob & Diana Bineau

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