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Sunday, March 18, 2012
Endurance
Dear brothers and sisters, whenever trouble comes your way, let it be an opportunity for joy. For when your faith is tested, your endurance has a chance to grow. So let it grow, for when your endurance is fully developed, you will be strong in character and ready for anything.
James 1:2-4
I'm still here!
I still can't believe that Kaitlyn is still here. She is simply amazing. I
know I say that all the time but it's the truth. She must have more
people she wants to get to know her. :-)
FLASHBACK- Kaitlyn exactly 2 years ago!
Good news, Kaitlyn went through 3 diapers last night! Her average has been one a day. Hopefully this is a sign that the Lasix is starting to work. Her belly size has also decreased by an inch, but she's also not receiving any food at all so that could be it too.
There is a little angel in the middle of the bow
She has only had 3 oz of formula (that's less than 1/2 a cup) once in the past 4 days, we are now on our 5th day without food. She is still getting her meds and gets a little water to flush her G-tube. She has been resting well but is still swollen in her belly, legs and feet. Her lungs are still fluidy sounding but not as bad as yesterday.
Trying to keep her as comfy and snug as possible
We are trying our best to enjoy each day with her, despite knowing that at any time she could be ready to go.
Here is a video of Kaitlyn's breathing sounds yesterday. She was pretty congested and her oxygen concentrations dipping to 80 at times, even on full oxygen.
What a angel! Still making a difference in so many lives. What a precious gift she is. She looks at peace and very comfortable. You are amazing parents!! I cant imagine how difficult this is for you all. God bless you all!
I pray that Kaitlyn knows that the almighty God will bring her peace and that it is okay to leave the caring arms of her family. She is a beautiful little girl, and I will forever have her in my thoughts and prayers--as well as her parents and grandmothers who cared for her so lovingly and tenderly. God, hear our prayers.
continuing to pray, wow such strength and perseverance. she gives us all perspective about our everyday. i don't know you and your family but i check this blog daily to see how she is doing and every night my daughter kisses kaitlyn's sweet face on my computer screen and we pray for your beautiful daughter. she has touched our lives and given us perspective. she has taught us about strength and faith and she continues to touch so many more.
Thank you for continuing to share your beautiful daughter with families, like my own, who are mere strangers to you. My friend Adam shares your posts and I search for them daily! Kaitlyn and your family are in the prayers and hearts of my family and many of my friends! Thank you again!
I have been praying for Kaitlyn everyday. Its amazing how one little girl can touch the hearts of so many...especially mine. She is a true testimony of how precious life is and not to take one second granted. Thank you for sharing her story with us. God Bless.
She must have a few more hearts to touch:) I have been sharing Miss Kaitlyn with my family and friends and also asking for their prayer support. Keep shining little Kaitlyn! We love your light! Shannon
awww she is so so cute my heart goes out to you guys you are very strong people and i know that she love you so so much!!! keep up the good work...Love always lindsey from maine <3
Your precious Kaitlyn has touched sooo many lives. In her short life Kaitlyn has touched so many lives. Thank you for sharing your beautiful little girl with us and the hardest journey you, Chip, Kaitlyn, Cole and your family will have to face.
Praying for strength for you all and that Kaitlyn is comfortable and pain free. Stacey
Please know that Kaitlyn and your family are in so many peoples thought and prayers. She is a very little girl to be blessed by having the best parents. Thank you so much for sharing your journey with everyone. She is a beautiful little angel and I just pray that you always feel God's loving arms wrapped around you.
I am a friend of Pat Heflin's and I have grown to love your family so much. I just want to hug sweet Kaitlyn. She is the most precious child. I grew up is Charlotte and Gastonia so I know Indian Trail. I wish you all the best and pray for you so much. Love Doris
Kaitlyn and your family still remains in my prayers many times throughout the day. Our little girl, who is 3, asks to also pray for Kaitlyn before bedtime. We continue to pray for your strength and her comfort.
What a precious little girl. You're faith and her perserverance has been an inspiration to so many. Our family is praying for her to go peacefully and for God to give you the grace and strength during this time. God Bless! Isaiah 40:31
I too check your blog several times a day. My two teenagers ask about her, also. They know I pray for your family daily. Yes, that is right, they are actually worried about someone other than themselves. My daughter and I love that you all continue to dress her so cute with her beautiful outfits, bows and curls to die for. You do not know me, but my brother is a friend from Richmond. Thank you for sharing your daughter, and her short but beautiful and purposeful life story with all of us who care. I do not know why I am so drawn to her and learning more about her disease. Maybe that is her life's mission. To bring us all back to FAITH, family and what is important in life. Thank you for your bravery and dedication to keeping us all informed. We rejoice with you, cry for you and pray with you. When the time comes to let Kaitlyn go, we will ALL be with you in thought, spirit and prayer. You know your family wil be wrapped in the arms of thousands who care from all over the world, and your God. I hope knowing this will be of comfort when you need it. When you are talking with Kaitlyn, please thank her for me, for changing my life. And I thank both of you for sharing her with us. Cole sure is a lucky little boy, to be a part of your family. I am sure he will always know what an impact his big sister has on our world in such a sweet way. Take care of yourselves and enjoy your little angels!
Praying for this beautiful child and for you, her parents. I've been following Kaitlyn's story for a couple of months now. Give her lots of kisses and tell her to say Hi to Jesus for me. Love to you all.
I'm a total stranger, but we sure are praying AND thanking God for Kaitlyn and her entire family. Please know that everyone has fallen in love with your little angel and she has impacted this world in just the couple years she has been here.
I don't know your family but you have touched mine and our approach to parenting. It is so important to cherish every moment and so easy to forget! Kaitlyn's story has reminded us that every day, every hour is a gift. Thank you Kaitlyn for helping us love each other and our one year old in a more genuine way!
Many people wait a lifetime to witness a miracle, but they miss what is happening right in front of their eyes. Kaitlyn and you, her family, are a miracle. I've only been reading this blog for a few weeks, but seeing the number of people Kaitlyn has touched and educated is overwhelming. Your faith, perseverance, optimism and strength are truly inspiring. I pray for peace and comfort for Kaitlyn and for strength, courage, wisdom, and peace for you,Deanna, Chip, and Cole. Sending peace, love and prayers your way!
Your scripture from James has been very meaningful to me as it was part of a recent bible study I did that was perfect timing for me. You guys are such an inspiration, even in your hardest days. Thank you for your bold witness to our Lord! In reading today's (Monday's) post and seeing that you may be in your final hours/days with your precious girl, you will continue to be in my prayers.
What a angel! Still making a difference in so many lives. What a precious gift she is. She looks at peace and very comfortable. You are amazing parents!! I cant imagine how difficult this is for you all. God bless you all!
ReplyDeleteBless her heart! Many, many prayers for your little amazing girl!
ReplyDeleteAh the face of an angel. How we enjoy your photos!! Thank you for sharing your lives with so many people. Kaitlyn has touched thousands.
ReplyDeleteMike & Nanci Glassman
She is just amazing!
ReplyDeleteI fall more in love with her everyday. God bless you Kaitlyn!
ReplyDeleteAmy Smith
She has reached out and touched me just this week. I am so honored to get to know her and her amazing family! God is Good!
ReplyDeleteI pray that Kaitlyn knows that the almighty God will bring her peace and that it is okay to leave the caring arms of her family. She is a beautiful little girl, and I will forever have her in my thoughts and prayers--as well as her parents and grandmothers who cared for her so lovingly and tenderly. God, hear our prayers.
ReplyDeleteBless her little heart I will continue to pray for your precious angel and your family!
ReplyDeletecontinuing to pray, wow such strength and perseverance. she gives us all perspective about our everyday. i don't know you and your family but i check this blog daily to see how she is doing and every night my daughter kisses kaitlyn's sweet face on my computer screen and we pray for your beautiful daughter. she has touched our lives and given us perspective. she has taught us about strength and faith and she continues to touch so many more.
ReplyDeleteThank you for continuing to share your beautiful daughter with families, like my own, who are mere strangers to you. My friend Adam shares your posts and I search for them daily! Kaitlyn and your family are in the prayers and hearts of my family and many of my friends! Thank you again!
ReplyDeleteI have been praying for Kaitlyn everyday. Its amazing how one little girl can touch the hearts of so many...especially mine. She is a true testimony of how precious life is and not to take one second granted. Thank you for sharing her story with us. God Bless.
ReplyDeleteShe must have a few more hearts to touch:) I have been sharing Miss Kaitlyn with my family and friends and also asking for their prayer support. Keep shining little Kaitlyn! We love your light!
ReplyDeleteShannon
awww she is so so cute my heart goes out to you guys you are very strong people and i know that she love you so so much!!! keep up the good work...Love always lindsey from maine <3
ReplyDeleteYour precious Kaitlyn has touched sooo many lives. In her short life Kaitlyn has touched so many lives. Thank you for sharing your beautiful little girl with us and the hardest journey you, Chip, Kaitlyn, Cole and your family will have to face.
ReplyDeletePraying for strength for you all and that Kaitlyn is comfortable and pain free.
Stacey
Please know that Kaitlyn and your family are in so many peoples thought and prayers. She is a very little girl to be blessed by having the best parents. Thank you so much for sharing your journey with everyone. She is a beautiful little angel and I just pray that you always feel God's loving arms wrapped around you.
ReplyDeleteGod bless you. You are in my prayers and heart.
ReplyDeleteKaitlyn is such a strong little girl. She continuously spreads her message and God's word. Prayers being said for her and herfamily.
ReplyDeleteI am a friend of Pat Heflin's and I have grown to love your family so much. I just want to hug sweet Kaitlyn. She is the most precious child. I grew up is Charlotte and Gastonia so I know Indian Trail. I wish you all the best and pray for you so much. Love Doris
ReplyDeleteShe is always in my prayers.. Thank you for sharing your story I feel like I have slowly grown to love Kaitlyn. God Bless.
ReplyDeleteKaitlyn and your family still remains in my prayers many times throughout the day. Our little girl, who is 3, asks to also pray for Kaitlyn before bedtime. We continue to pray for your strength and her comfort.
ReplyDeleteWhat a precious little girl. You're faith and her perserverance has been an inspiration to so many. Our family is praying for her to go peacefully and for God to give you the grace and strength during this time. God Bless! Isaiah 40:31
ReplyDeleteI too check your blog several times a day. My two teenagers ask about her, also. They know I pray for your family daily. Yes, that is right, they are actually worried about someone other than themselves. My daughter and I love that you all continue to dress her so cute with her beautiful outfits, bows and curls to die for.
ReplyDeleteYou do not know me, but my brother is a friend from Richmond. Thank you for sharing your daughter, and her short but beautiful and purposeful life story with all of us who care. I do not know why I am so drawn to her and learning more about her disease. Maybe that is her life's mission. To bring us all back to FAITH, family and what is important in life. Thank you for your bravery and dedication to keeping us all informed. We rejoice with you, cry for you and pray with you. When the time comes to let Kaitlyn go, we will ALL be with you in thought, spirit and prayer. You know your family wil be wrapped in the arms of thousands who care from all over the world, and your God. I hope knowing this will be of comfort when you need it. When you are talking with Kaitlyn, please thank her for me, for changing my life. And I thank both of you for sharing her with us. Cole sure is a lucky little boy, to be a part of your family. I am sure he will always know what an impact his big sister has on our world in such a sweet way. Take care of yourselves and enjoy your little angels!
Praying for this beautiful child and for you, her parents. I've been following Kaitlyn's story for a couple of months now. Give her lots of kisses and tell her to say Hi to Jesus for me. Love to you all.
ReplyDeleteI'm a total stranger, but we sure are praying AND thanking God for Kaitlyn and her entire family. Please know that everyone has fallen in love with your little angel and she has impacted this world in just the couple years she has been here.
ReplyDeletePlease stay strong
Dyan, Paul Witten's sister - you have said so beautifully what so many of us have tried to convey during this little girl's journey. Amen and Amen.
ReplyDeleteI don't know your family but you have touched mine and our approach to parenting. It is so important to cherish every moment and so easy to forget! Kaitlyn's story has reminded us that every day, every hour is a gift. Thank you Kaitlyn for helping us love each other and our one year old in a more genuine way!
ReplyDeleteMany people wait a lifetime to witness a miracle, but they miss what is happening right in front of their eyes. Kaitlyn and you, her family, are a miracle. I've only been reading this blog for a few weeks, but seeing the number of people Kaitlyn has touched and educated is overwhelming. Your faith, perseverance, optimism and strength are truly inspiring. I pray for peace and comfort for Kaitlyn and for strength, courage, wisdom, and peace for you,Deanna, Chip, and Cole. Sending peace, love and prayers your way!
ReplyDeleteYour scripture from James has been very meaningful to me as it was part of a recent bible study I did that was perfect timing for me. You guys are such an inspiration, even in your hardest days. Thank you for your bold witness to our Lord! In reading today's (Monday's) post and seeing that you may be in your final hours/days with your precious girl, you will continue to be in my prayers.
ReplyDelete