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Monday, March 19, 2012

Love Birthday

Today is bittersweet. Deanna celebrates her birthday and deserves to feel happy and focus on herself, but with all the weight of what is going on with Kaitlyn it is difficult to follow the adage of “Happy Birthday” since the struggle we see is anything but happy and the focus must be on Kaitlyn. If it can’t be a happy birthday then I say let’s make it a “Love Birthday” filled with memories of love between a mother and her precious daughter. So to Deanna I say I hope you have a great “Love Birthday” and that you feel more love today than ever before.

What better gift than to be able to hold her baby girl

A beautiful bond

Kaitlyn had a rough night last night.  Her breathing was very congested no matter which side we turned her on. We gave her morphine every two hours to try and help her, but she still seemed to be awake quite a bit. She tries to cough, but it comes out like a hard breath and sounds just horrible.  When I hear her I just want to cough for her. Her eyes are also very yellow again and the fluid is still present in her abdomen even having gone 6 days now without food. We want nothing more than to feed her, but we know that if we do it will make the fluid and lung congestion even worse. It’s a horrible place to be, but we have always listened to Kaitlyn and we feel her body is telling us it can’t handle the food.

Snuggled with her glow worm
Hospice came this morning and checked her over. She seemed to think Kailtyn was very close, possibly within 24 hours. Hospice, Deanna, and I have felt that way before and even shared it openly on here, but we all know this is Kaitlyn and she is a tough girl and doesn’t follow “normal” so we will just take it one day at a time like we have been. I must admit though, I think her fight is wearing out. She sleeps most all of the day and her hands and feet are often cold while her body runs hot. Her breathing seems more labored, her O2 often settles in the low 80’s, and her congestion/cough is constant and difficult to hear and watch. 

Pretty in her big white bow

We certainly love her beyond what words can even express, but part of me wants her to not have to struggle and fight anymore. I know what is waiting for her when she decides its time and she deserves that far more than she deserves the struggle that awaits her here every day. 

Wrapped in love

As always please continue to pray for comfort for Kaitlyn and if you would like, join me in wishing Deanna a “Love Birthday” so she knows how loved she is.

144 comments:

  1. Deanna, wishing you all the love today on your birthday. Lifting you all up in prayer.

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  2. Happy Love Birthday Deanna!!

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  3. The tears are flowing as they usually are when I read your posts. You are all forever in my prayers and heart, as Kaitlyn is a constant reminder to me to be a better person, a better mother, a better wife. Thank you for sharing your journey with us. You all deserve a day of love. Happy Blessed Day to Deanna.

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  4. Happy Love Birthday Deanna. Your family has more Love to share and I wish you the strength and courage to maintain during these last few days. Kaitlyn is a beautiful girl and has changed the way I look at life forever. I will never forget her or your precious family.

    Holly Hartzell

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  5. Beautiful and well written. Wishing Deanna a great Love Birthday. What a true little love you have there, Kaitlyn is precious.

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  6. Love Birthday to you Deanna. Kaitlyn is constantly in my thoughts and prayers. I am in tears reading what this sweet little girl is going through. She is so incredibly blesses to have such wonderful and loving parents. We love you Kaitlyn--The Smith Family, Red Lion PA

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    1. I also wanted to add that I have asked my sister Leah in heaven to watch over Kaitlyn and welcome her when she decides she is ready to be with God. I heart so breaks for you. Always in my prayers...

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  7. I'm so sorry that Kaitlyn is struggling. It is so hard to witness from a distance even, that I know you are both having a hard time. It so incredibly evident that your help is from the Lord. It's in your words and on your faces in the pictures. I pray that He continues to comfort you and Deanna. A Love Birthday is really appropriate. Hugs across the many miles. ~Anjel

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  8. Praying for comfort for Kaitlyn, and that Deanna has a birthday filled with love.

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  9. Happy Love Birthday Deanna. You and your family are in my thoughts and prayers.

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  10. Happy LOVE Birthday Deanna. I know you don't feel like celebrating - just surround yourself with Kaitlyn's love and the love of your family and friends. It is a special day because she is still here. All of us moms of Tucker alumni are very proud of you.

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  11. Happy Birthday Deanna! I have kept up with your blogs and prayed for your family every day. Your Kaitlyn, as well as your family's strength, has touched people that do not even know you. I know that the thought of not having Kaitlyn physically present must be devastating beyond words but I know that the wonderful person you are knows that her being at peace is most important. ( And yes, I realize that probably angers you to even think about and you just want to scream...I can not even pretend to know how hard this is) You are a wonderful mother and Kaitlyn is going to be at peace. And you are going to have a special little angel watching over you and your family forever. Peace and love be to you and your family.

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  12. Deanna you look beautiful holding your beautiful daughter on your birthday! God bless you all. I am so sad for you guys. :( I just wish I could send you a miracle, but I will just keep sending prayers that Kaitlyn either makes another turnaround, or that she goes to heaven in peace and love.

    Love, a Kaitlyn follower from TX, Scarlett

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  13. Praying for peace and comfort for you both. You did everything God asked of you as her parents (and more!). You prepared her for eternal life in Heaven and she knows how much you (and all of us) love her.

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  14. Wishing you a special love birthday Deanna. Such beautful pictures with your precious baby in your arms. Praying for peace for your entire family, but especially sweet Kaitlyn who has made a permanent impression on my heart.

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  15. I wish you the Best Love Birthday Deanna! You are nothing short of an AMAZING woman and mother. Chip, you are nothing short of an AMAZING man and father. Kaitlyn is nothing short of a miracle and a blessing to SO many. I am so inspired by you all and I thank God for the opportunity to see a very small insight into your life. I pray for you all many times during the day and I think of you very often. May Katilyn feel no pain and may you feel God's presence and love at ALL times. May God continue to Bless you all. In His name and love, Ali Farabee

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  16. Happy Love Birthday Deanna. God continues to hold you and your precious girl in His arms.

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  17. Love Birthday to you! God bless you all, especially Miss Kaitlyn! Hugs, love, etc to you all. I pray for no pain for Kaitlyn, and strength and conviction for you! As always, she is adorable in the pictures. Anjel, Kyra, Alana and I send our abiding love and respect to you. Kaitlyn, you'll always be my Guardian Angel, and the first message I received from God! Thank you SO much, Baby Girl! I love you and will never forget you!

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  18. Happy "Love Birthday"Deanna! Thank you for sharing your sweet little girl with us. Kaitlyn has touched my heart and changed me in more ways than I can count. She is such a beautiful angel! Please take a moment to know God loves you more than anything and that He cries when you do. I pray for peace and comfort for her and your sweet family.

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  19. Dearest Deanna - sending you continued love, especially, today, on your "Love Birthday". Your husband is an amazing man to write this today...filled with the strength from his little Kaitlyn, his love for you and the love and prayers we all share, near and far.

    Linda Dietz

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  20. Happy love birthday Deanna- I continue to pray for you all, especially Kaitlyn!

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  21. May God bless all of you, especially your dear sweet Kaitlyn.

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  22. Although you do not know me or I you, I have been following your journey for months on your blog from afar (MA). You have such an angel. Happy Love Birthday. My thoughts and prayers are with all of you.

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  23. Love Birthday to you, Deanna! What a beautiful picture of you holding your sweet, precious girl on your birthday. I have never posted on here, but check Kaitlyn's Korner daily. I am continuously amazed by your family's strength and faith in God. What a blessing for Kaitlyn to feel Jesus' love here on Earth through her parents. I pray daily for each of you.
    Love, Katie from Richmond, VA

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  24. Happy Love Birthday Deanna. I agree what better a gift then to hold one of the best gifts you will ever have...Kaitlyn.

    Thinking of you all daily...

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  25. Deanna, I hope you have a wonderful "love birthday." Thank you for inspiring me to be a better mom. Kaitlyn looks beautiful and you look so peaceful holding her. Lifting all of you up in prayer.
    Anne

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  26. Wishing you the most love filled birthday ever! You are the most courageous, strong, loving & dedicated God loving woman that I've ever met. You have been through so much yet you always have such a beautiful smile, which clearly shows how deep the love for your children is. I pray for continued strength for you, Chip, Cole, & sweet, beautiful Kaitlyn. She is already an angel here on earth. Sending love to you & Kaitlyn on your "Love Day"

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  27. Happy Love Birthday to you Deanna! Continuing to pray for Kaitlyn's peace and comfort.

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  28. Happy Love Birthday, Deanna! Our thoughts and prayers are with you during this difficult time.

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  29. Love to you Deanna. May you feel the love of Jesus surrounding you all today. Praying always.

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  30. While my heart continues to break for you, it is also filled up with the amount of love you have for each other, and especially Kaitlyn.

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  31. Have a wonderful love birthday Deanna! Hope you share this day filled with love enjoying the time kaitlyn still has with us on earth' my prayers are with your family continuously!

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  32. Happy Birthday, Deanna! I officially declare you the most loving, caring mom in the whole world. You deserve to have a wonderful birthday, surrounded by the love of your family. Continuously praying for you all.

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  33. All love to you on your birthday, Deanna! You're in our hearts, as is your entire family, especially Kaitlyn. The Platow Family

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  34. First of Happy Love Birthday! Second, you always look so pretty Deanna. You are such a strong and positive woman. I continue to pray for kaitlyn and even Cole as it may be hard for him at times also. I will light a candle and pray for you and your family as even more difficult days ahead come your way! May God bless your family and may you find peace and comfort.

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  35. Many Heartfelt prayers, and love comming your way. A dear friend of mine posted your story on fb, and asked us to come read your story, and send you prayer, and love birhtday wishes, instead of sending her birthday wishes. May the Holy Spirit, wrap you and this little one in his comfort, and peace. May you always know the compassion and the love of Jesus as he holds you all. I pray that you would know the presence of the Lord stronger and stronger with each moment. I pray that you would know that every tear that falls is one that God sees and cares about. In Jesus Name, Amen

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  36. I've been quietly following your journey for sometime now thanks to a mutual friend of ours who regularly shares your link on Facebook. My heart aches for you, but I am amazed each time I read your words at how strong and faithful your family is. Sweet, sweet love day wishes to Deanna and lots of comfort and prayers for Kaitlyn. Thank you for sharing her with us:)

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  37. Happy love birthday Deanna!!! I just want you all to know how touched I am by yours and kaitlyns story... I may only be 14 and not completely understand what you all are going through but there is nothing out there that will keep me from wanting to keep living and getting better... I hope that she keeps fighting for as long as she can and touching people like she has touched me... I have shared your blog with some of my friends and teachers and I want to help you all in some way!!!

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  38. Happy Love Birthday!!!! We are praying for your family!!

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  39. Happy Love Birthday may God Bless You and your Loved ones each and every day.

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  40. Oh, sweet Kaitlyn. You are so precious and your family loves you so much. Happy Love Day Deanna. You are so loved, I can tell. I can't help but think your baby girl wanted to hang on a little longer so she could give you some hugs on your birthday. What a courageous little angel. Kaitlyn, I can't help but think of this quote when I think of you. It's from Pooh Bear, who has so many good, happy thoughts for us.
    “If there ever comes a day when we can't be together keep me in your heart, I'll stay there forever.”
    You will forever be in my heart. Your Mommy, Daddy and sweet brother are loved by so many too and there are so many people praying for them too. God be with you precious princess.

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  41. A special love birthday to you, Deanna. I continue to pray for Kaitlyn to be free from pain and fear. She truly is on the edge of glory now. My heart breaks that you and Chip must endure this pain, but I pray that God continue to fill you with strength. Your daughter clearly loves and appreciates you so much. She is a gift to so many strangers like me. God, please hold this family in your arms. Give them strength, peace, and an absence of fear while Kaitlyn makes her transition.

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  42. (continued from above) I have emailed Deanna letting her know how touched I am and that if there is something that she thinks would help either you or NPD I would love to do it... I hope you guys stay strong and make it keep fighting till the end!

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  43. Happy Love Birthday! A good friend of mine sent me to your blog, and I have been so encouraged by your trust and faith in Jesus as you've endured such a difficult time. Thank you for being a beautiful testimony of a family who believes in God's sovereignty and trusts in His plan even when it doesn't make any sense. A few lines from Kari Jobe's "Find you on My Knees" have been on my mind as I think of your family..."So what if sorrow shakes my faith, what if heartache still remains, I'll trust You. God, I'll trust You. 'Cause You are faithful and I will find You in the place I'm in..." Praying for strength, peace, and wisdom for you all.

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  44. Wishing you a love birthday! We think about you all a lot each day and of course pray for you, too.

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  45. Happy love birthday. You are so brave. I read you blog and cry and pray for you. Your strength and understanding is amazing.

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  46. Jesus please hold them all, blanket them in your presence during this time. When there's no answers, please bring your peace. Please. In your holy name i pray.

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  47. Sounds like Kaitlyn is getting very close to the end of her life. Today is Deanna's birthday. Happy Birthday Deanna and what an amazing gift to be able to hold your sweet girl. I know something you will never ever forget. When it is Kaitlyn's time I pray that he takes her quietly and peacefully while she is surrounded by those who love her most. All of us around the world are praying as Kaitlyn's life slows down and she prepares for eternity with her maker. God Bless her and God Bless you all.

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  48. Wishing you love all around on your love birthday Deanna. And praying as always and more than ever for comfort and peace for Kaitlyn.

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  49. Happy LOVE birthday to one of the most amazing mothers that I have come to know over the past few months. Your strength, love, dedication, and courage continue to overwhelm me ... I think of you and your family daily and pray that Kaitlyn will be given peace in God's kingdom. Know that your angel has touched me in an immeasurable way ... May the love of our Lord surround your beautiful family on your love birthday!

    "To Everything, there is a season, and a time to every purpose under Heaven."

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  50. Happy love birthday to you, Deanna. I hope your day is as special as it can be, and you enjoy the gift of having Kaitlyn with you today. Your story, faith, patience, strength and love inspire me everyday and I can't even begin to imagine what life must be like for you. Kaitlyn is so very beautiful and such a precious gift from God. Reading your blog everyday has completely changed my perspective on life and that was most definitely sweet Kaitlyn's purpose.. To change lives. She is so very beautiful. Praying for you today and everyday. Much love.

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  51. LOVE Birthday Deanna! May you feel wrapped in the same love that you wrap Kaitlyn in each and every day!

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  52. You don't know me, but every time I read something here I end up in tears. I hope your birthday is filled with the love you so deserve. You and your whole family are in my prayers.

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  53. Lots of love to you, Deanna! We continue to send love and prayers for everyone. May God hold Kaitlyn tighter than ever and bring her comfort and peace. The Russells

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  54. "Do what you can, where you are, with what you have."

    your love and strength are truly inspirational!

    may Kaitlyn find peace and comfort soon!

    Love Birthday Deanna!

    Love,
    The Coopers
    in Red Lion, PA

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  55. Deanna, I haven't seen you since High School and even then I don't think we knew each other... but I have followed your blog through mutual friends over the last few months. You are amazing. I truly feel love for Kaitlyn and your family. I pray nightly for strength for you and your family... and for Kaitlyn to find peace. I cry everyday when I read your post, mainly because every post moves me. You are an inspiration to anyone going through something like this... your strength and your faith are awe-inspiring. I wish you the best Love Birthday ever!

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  56. Happy Love Birthday Deanna!! Continued prayers for strength and peace for you all.

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  57. Deanna ~ many prayers go out to you and yours this day ~ I hope you know there is much love in this community and I personally pray you all will find peace and comfort during these trying days. Have an amazingly loving birthday ~ and GOD BLESS each and every one of you!
    Michelle Schaffer

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  58. Deanna, you are so loved! You have blessed so many lives, and touched so many hearts, by sharing your precious Kaitlyn with us. I am praying for you, Chip, Cole, and Kaitlyn. I pray for peace, comfort, mercy, and healing. I am confident that God will heal Kaitlyn, either on this side or other side. Jesus said, "Take heart, I have overcome this world."

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  59. Wishing you all the LOVE your heart can hold this birthday!

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  60. LOVE BIRTHDAY TO YOU DEANNA! Hold your precious little angel close today. Praying for a peaceful day for Kaitlyn.

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  61. Thinking of you and your family. May God give you an amazing comfort and peace today, and may little Kaitlyn goe peacefully into the arms of Jesus. God knew the Greatest he could give Deanna today on her Birthday, was to be able to spend it with her princess. Wishing you a HAPPY LOVE BIRTHDAY, DEANNA! God Bless! The Hill family :)

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  62. Deanna.....Have a great LOVE Birthday!!!
    Praying for you and your sweet family <3

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  63. Happy Love Birthday Deanna!! Praying for you, your family, and Kaitlyn always.

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  64. Deanna,
    Love birthday to you,
    Love birthday to you,
    Love birthday to the most wonderful mommy on the face of the earth.
    Love birthday to you.
    And many moorrrrrrrrrrrrrrrrrrrrrre!!
    (I can't think of a better present than you loving and comforting your preciouss daughter, Kaitlyn, and her melting in your arms. God, help them all with your mercy. Peace be with you.

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  65. Love Birthday to you Deanna! I'm so happy that Kaitlyn is spending her time on Earth with you today, what a wonderful gift. Thank you for sharing your family with us. Prayers to Kaitlyn and all of you, that you may enjoy each other, and have peace in your decisions. Much support and love from Virginia

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  66. Happy " LOVE Birthday Deanna "!!!!!!!!! You are a very strong person and you inspire a lot of people with this blog. You may not see it but we ( who read it ) see it everyday. Kaitlyn was truly blessed when she got you for a mother. We will continue to send prayers your way and may you find peace in knowing GOD will take care of her.
    God Bless you and your family.

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  67. Continuing to think of you and your family. I cannot tell you how often you are on my mind and in my prayers. I have only been reading of Kaitlyn's story for about three weeks and in that short amount of time, I have come to love her and your family so much. My little girl and I continue to pray for Kaitlyn. She asked to pray for Kaitlyn every night before she goes to bed. Kaitlyn is an absolutely precious gift. Thank you for sharing her, her story, and your family with us. We continue to pray for your strength and her comfort. I pray that God continues to wrap His arms around your family. Love in Christ, Genia (SC)

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  68. Happy Love Birthday, Deanna! I loved the picture of you holding Kaitlyn (my daughter Lydia loved Kaitlyn's ladybug shirt, we call her "Lydibug"). May you find some small joy today as we celebrate you and give thanks for you! You're one amazing lady!
    Kaitlyn is in our constant prayers. Heaven IS for real, sweet girl, and you will never struggle again there. We pray for God's will and peace.

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  69. A very special Love Birthday to you Deanna! I read you blog everyday and have to say you are truly an inspiration to me! You are an amazing woman and mother. I pray daily For God to keep Kaitlyn pain free and to give you both the strength needed to deal with the day ahead. Kaitlyn is a precious gift from God and I am so glad you are sharing her story with us.
    May God keep his arms around you all. We will continue to pray for the whole family.

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  70. I think little Kaitlyn wanted to wish her mommy "love birthday" in person. I continue to pray for Kaitlyn and the rest of your sweet family many times each day. Much love to you all on love day! Shannon in Spartanburg.

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  71. Happy Love Birthday Deanna! Thinking and praying for sweet Kaitlyn and your family during this very difficult time. God bless you all.

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  72. Wishing Deanna birthday love and Kaitlyn comfort and the rest of you comfort too!

    -Heather from Baltimore

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  73. I wish you a very special Love Birthday, Deanna! I am so glad that Chip chose this much more appropriate wish for us to shower on you on this bittersweet day. Much love and endless prayers for God's mercy for Kaitlyn and His loving comfort for you, Chip, and all of Kaitlyn's loved ones.

    God commands us to love one another and learning to love is one of the main purposes of our life here on earth. As a young woman, you already know more about this godly love than many of us will learn in a lifetime. So, a Love Birthday, is so fitting for you. Your love for Kaitlyn and God is an inspiration that amazes and humbles me. Again, Love Birthday to you, Deanna!
    Pat in Richmond, VA

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  74. Love birthday Deanna! You are a shining example to all what love is and how beautiful it can be. I believe your familys love has made me love mine even more. My mother lost her infant son on her own birthday, and I have always prayed to him as my guardian angel and now as my daughter's and your family's. God bless you.

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  75. A Love Birthday for you

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  76. A very happy love birthday to you!!! I have watched for a few months now and pray for Kaitlin daily that God would perform some miracle, or ease her pain and let her pass peacefully. She is such a special little girl and such a little fighter! I pray that Jesus would take her peacefully when its time and that you both will find comfort in knowing she is pain free and with Jesus waiting for you. Enjoy every second with your darling little 'goldilocks' (her beautiful curls remind me of goldilocks lol). <3

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  77. Happy Love Birthday, Deanna. You are an amazing woman.

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  78. "LOVE BIRTHDAY" I'm so glad Deanna got to spend one more birthday with her precious baby girl Kaitlyn! :)

    Sending, love, thoughts and prayers your way.

    Stacey

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  79. How special to have a "Love Birthday" with Kaitlyn. May it be peaceful and full of the best love ever!
    Raina

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  80. My heart honestly breaks for your family. I know that's not positive and I'm sorry. I'm lifting you up in these tough days. My son was born in June 2009 so I feel even closer to you Deanna as a mother of a very similar in age child. I'm happy Kaitlyn held on long enough for your birthday. May you feel the comfort of our Lord in these days. May you be granted the peace that surpasses all understanding as you prepare to give your child back to the Lord, her Heavenly Father who loves her so much
    --A fellow Christian

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  81. Have a great love birthday! We are praying for your family!

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  82. A Love Birthday is very fitting for you, Deanna. You have shown me the true meaning of a mother's love. I am praying for your beautiful daughter and family. Thank you for sharing your story.

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  83. Deanna, we share a birthday. So today on our mutual birthday I'm asking God to flood your soul with love and His peace. My longtime friend asked me several weeks ago to pray for your family. I have observed some of the most concentrated love I have ever seen. My friend's name is Mary Hogsed and we have joined in praying for your family. As you look back on this birthday may it be filled with precious memories of the time spent with Kaitlyn. Although we may never meet here on Earth you will always be in my heart and I look forward to seeing you in Heaven. As our Savior says" my peace I give to you. Not as the world gives but a peace that passes understanding"

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  84. Praying for a special "Love Birthday" to your dear wife...Have been following your blog through a friend of yours & mine & I cry every time I read what you all are going through...You both have been such a Godly inspiration to all who read this...I pray that you continue to feel the comfort & peace that only comes from our Sovereign God & that His Grace continues to sustain you through this dark dark valley..."Not Grace to bar what is not bliss...Nor flight from all distress, but this...The Grace that orders our troubles and pain...And then in the darkness is there to sustain." God bless your dear dear hearts!!!

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  85. Happy love birthday to Deanna! May your day truly be full of love and peace! I continue to think of you daily...praying for peace and comfort for Kaitlyn!

    Ali Reardon

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  86. Enjoy your Love Birthday with that sweet girl! I know you will. Continuous prayers for all of you, for comfort, strength, courage and peace. Prayers for sweet Kaitlyn to be pain-free, comfortable and peaceful. May angels watch her through the night and God's love shine in morning light. :)

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  87. Wishing you a very special love birthday! I'm continuing to pray for your family! God bless!!

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  88. Happy love birthday!!! We are all praying for you :)) Haleigh Gunter

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  89. Happy Love Birthday Deanna! You are and will continue to be in our prayers every day. Bob and Diana Bineau.

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  90. We have never met and more than likely never will but I am amazed at the strength and grace of your beautiful family during this unimaginable time. Wishing you love on your day and prayers for the days to come.

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  91. Hope your day was filled with love. I know that Kaitlin has brought you so much love beyond belief. I continue to pray for your family. Kaitlyn is a fighter like no other. And you guys as parents are amazing. Prayers going up for all of you. Wishing you a LOVE birthday......

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  92. Happy Birthday, Deanna! Will continue to say prayers for you, your family, and your beautiful Kaitlyn.

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  93. Love birthday to you Deanna. Prayers for strength and comfort.

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  94. Love birthday, Deanna. Sending prayers everyday for your family. All of you are always in my thoughts and prayers.

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  95. Happy Love Birthday, Deanna! Sending prayers to you're family especially sweet Kaitlyn.

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  96. Love birthday, Deanna. I check in here every day. While I do not know your family, you are all in my prayers each day. I hope that you feel the love coming through, even from total strangers!

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  97. Deanna......Smiley Love Birthday. We are thinking of you all today and everyday!! Just know how loved you are by your husband, children, family and friends and of course God. We are so sorry that you and Chip are struggling with your lil angel being ill. You are an incredible inspiration to everyone who knows your family and anyone who reads about Kaitlyn. She is surrounded by your never ending love and she will take that with her when she goes to heaven. You are wonderful parents. Prayers for comfort and peace for the four you.
    The Crockers

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  98. Happy Love Birthday! I'm a friend of Erin's at CHA and I have been reading your blog and sending prayers your way for a long time. Especially now, praying that God heaps His grace and mercy on you all. You are an amazingly inspiring family.
    ~Heather Esch

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  99. Wow Deanna, my daughter Nicole and my husband share the same birthday! We wish you a happy Love birthday today! Praying for you guys daily. Thankful that she is still fighting even on your Birthday!!

    Christy Fleming-Brown

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  100. Happy Love Birthday Deanna. I just recently started reading your blog and since then your family has been in my thoughts and prayers. I pray peace for your wonderful family and that your faith will stay strong now and throughout your life- in good and bad times.

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  101. Wishing you a beautiful love birthday with your special children and husband. The love you give your children is so powerful. While you're busy showering Kaitlyn with love, I sure hope you can feel the love others are sending you. You are a remarkable woman. God bless.

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  102. Deanna, Happy Love Birthday!!! Even though we have never met, I get your posts through a mutual friend and please know I pray for Kaitlin and your family daily.

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  103. Deanna, Happy Love Birthday! We have never met, I heard about you through Rebecca Wood. I check your blog daily to find out how Kaitlyn and your family are doing. I pray for Kaitlyn and your family daily! God Bless and love you!

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  104. Happy Love Birthday. Many thanks for sharing your beautiful family with us. May peace be with you.

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  105. Happy love Birthday! I don't know you but I found your blog on another blog and I pray for your family every day.

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  106. Love Birthday! Your strength, courage, and hope is inspiring. May your special day be filled with the most love one can feel. God Bless.

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  107. Dear Deanna....Happy Love Birthday to a very special Mother! Your strong faith in our loving Father inspires me! You and Chip are very special people, because God chose you to be Kaitlyn's parents! May God continue to watch over your family and give you the strength to face each day!
    I will continue to keep your family in my prayers.
    Nancy Lewis...Concord, NC

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  108. God, please bless Deanna on her special love birthday. Be with this beautiful family Lord send your angels to surround this family with comfort and love. May the angels sing the songs of love so that this precious baby girl will hear. Thank you for letting this special miracle child touch and change my life forever! Peace, love and comfort to this family Lord. thank you for hearing our prayers.

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  109. Peace Be With You Always.

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  110. I have read your posts for almost 2 months now, and my heart goes out to you. I usually don't know what to say and usually go to bed crying for your daughter's struggle and your heartache. I hope your birthday is full of love. May God continue to watch over you and Kaitlyn.

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  111. May you Deanna have a Love birthday like no other. You deserve all the love and so much more for all the love you have given to us. You and Chip have shared a love so precious and it has changed lives... We also have never met, but I think and pray for you all daily. I too have a son who is just a month older than Kaitlyn and there is not a moment that I don't think of her when I look at him. Kaitlyn will forever be in my heart. Praying for your peace, strength and comfort for the days to come.

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  112. May you feel all the love and support flooding your way today and every day.

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  113. Love Birthday to you. Thank you for teaching us all to love better and for putting so much more love in the world.

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  114. Happy Love Birthday, Deanna! May the Lord give you peace, comfort, and love during these difficult days and know that you are an amazing mother. Kaitlynn knows that God blessed her with two amazing parents and soon she'll be watching over you and Chip from Heaven. God Bless.

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  115. Happy Love Birthday Deanna. I too have been quietly following Kaitlyn's story. You and your family are amazing and an inspiration. The love you all have for each other shows in your beautiful pictures. I will continue to keep all of you in my prayers.

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  116. Dear Deanna,

    Love birthday!

    Charlie Flexon

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  117. Prayers, prayers and more prayers for that beautiful little lady. Melissa Schaller

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  118. Deanna - Love Birthday. My tears flow when I read the posted blogs. A wonderful & beautiful family has touched my heart, soul & life. For that - I thank you. I also pray for God-given peace when Kaitlyn & God decide He needs another angel in Heaven.

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  119. Happy Birthday to you beautiful lady! Inside and out...you are the most amazing and strong person I know of...you are extremely blessed with an amazing husband to put this post up...and Kaitlyn is hanging on to be there with you on your special day!!! You are incredible through and through...God bless you with continued strength and guidance to carry on day after day. Love and hugs to you on this special day and your babies!!!

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  120. You and your family are in my prayers. I also wish you a happy love birthday. I do not know you but I know your daughter is so lucky to have a mom, dad, and brother like she has. You all give her so much love.

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  121. happy birthday hope your day was ok being the circumstance just to let you know you all are in my prayers as well as my church here in newburg pa

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  122. happy, happy love birthday, deanna. i've been following your blog since hearing about you from my best friend from college, amy troemmler vandesand. my thoughts and prayers are with you and your family always, but especially today on your birthday.

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  123. I just recently started reading your blogs and want you to know how much I love Kaitlyn. She has given me an appreciate for my own two beautiful girls, a renewed sense of faith and a heart full of love you for your wonderful family. I pray for you all everynight. Happy Love Birthday, here is to many more to come.

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  124. I have been following your blog for sometime through a mutual FB friend from JRT and just want to Thank you. You have raised such a beautiful, angelic, strong and inspirational daughter. I have a 3 yr old daughter and as a mom all you want to do is protect your child from pain. Kaitlyn is a fighter and her willingness to fight has touched so many lives and I know you are proud of all she has accomplished. She has not only taught me about NP disease but also about faith, love, strength and the lord. I will continue to pray for you and your family. Have a Love birthday as their is no greater gift than the love of your family. God bless you and your family.

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  125. Happy Birthday Deanna. You and your family have been in my daily prayers for months since Lynette told me about your blog. I pray that God will wrap His loving hands around Kaitlyn and embrace you and Chip and your families in His mercy. It was during those treks around the country that I learned of your unwaivering faith. A faith that I pray will sustain you now. You inspire me to be a better parent and you inspire me to love my Zach even more than I do. Peace be with you.

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  126. Happy LOVE LOVE birthday! I hope you have a wonderful birthday, cherishing every moment you have with your daughter and precious family. You guys are always in my prayers. Your faith is inspiring and thank you so much for sharing your story with all of us. You are truly showing what trusting in the Lord looks like. Much love and always, constantly praying.

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  127. Hope you have a wonderful Love Birthday Deanna!
    Praying for a peaceful and pain free night for your little Princess

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  128. Happy Love Birthday to a beautiful, strong, and most loving mother! The pictures posted here are always sweet, but these today are magnificent. Seeing a mother's love for her child is the most beautiful and soulful experience. Thank you for opening up your hearts and sharing.

    What an eloquent piece, Chip. Praying for strength for all of you. May Kaitlyn only feel love.

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  129. Happy birthday to the most amazing mother because if it weren't for you. Kaitlyn wouldn't have changed my life or helped me believe in God again. You deserve all the happiness in the world and your dear sweet children are so blessed!

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  130. LOVE Birthday - very appropriate! Your family has shown the true meaning of the word. May you all be wrapped in LOVE and comfort in the coming days. Prayers going out as always. Love you guys!
    Denise

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  131. Happy Birthday to a wonderful mother and role model to so many people. I read your blog everyday and your strength is just beautiful. Kaitlyn is blessed that she has two loving and wonderful parents. I will continue to pray for your family. God bless

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  132. Charlene DutrembleMarch 20, 2012 at 1:32 AM

    Have the most amazing Love Birthday possible. Thank you both for sharing your beautiful angel on earth with all of us. I started following your story back in December from my husband who grew up with Jane. I am raising the youngest of my children and have appreciated her more since I have raised two others before. She will be 3 on Friday, my oldest will be 26. Even with this, I have learned to appreciate each moment even more through your words, strength and amazing love of your daughter. When I am up for a couple hours with my daughter because she just wants to be up and rock, I rock her. I soooo appreciate the fact I am able to hold her, something I was so excited to see Deanna was able to do for her birthday...I am sure the most amazing gift she could have asked for. I pray every day for your precious daughter and your entire family, including Cole. I am sure the strength your family has will help him through the times to come. As I told Jane not too long ago, Kaitlyn is a precious angel sent her for just a short while because she is too beautiful for this earth and can do her work in a shorter time. Thank you for sharing her with us and the love and hard times. You have inspired so many of us...much love, prayers for strength and for God to hold you all in his arms to give you peace...and may he lovingly and peacefully take Kaitlyn when the time comes and give her the beautiful gift of health in Heaven where she can run and be the child you so want her to be here on Earth. God bless.

    Charlene and David Dutremble
    and daughter Mackenzie whom I share your story with.

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  133. Love Birthday to you Deanna, thinking of you all xx

    Mel

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  134. Wishing a very LOVE birthday to you Deanna. Although we have never met, you are such an inspiration for me as a mother. Your loving spirit is so evident in every picture and every post. I have learned so much from you and your family. After following your blog for several months, I still cry everytime I read your posts. My heart aches for you! I am sending you a giant hug across the miles as you comfort Kaitlyn and love on her as she grows her wings to meet our Heavenly Father.
    Peace and love always to you!
    Mary in AZ

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  135. "The Lord bless you and keep you-the Lord make His face shine upon you, and be gracious unto you; the Lord lift up His countenance upon you, and give you peace."
    That passage has always brought me a sense of quiet and calm in my heart and soul when I have faced any trial or challenge in life. I send it to you all, and especially for your birthday, Deanna. I put the Favicon of little Kaitlyn on my webbrowser's tool bar so I see her precious face whenever I am on my computer (and I'm here a lot due to my work). I pray for her and you each time I see it. It reminds me of God's enduring love and grace and how He has his face shining upon Kaitlyn as He has used her awful disease for his greater good. You all will continue to be in my thoughts and prayers. With much love, Lorelei

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  136. Happy Love Birthday Deanna! I know it has to be hard to enjoy, but seeing you holding your sweet baby seems to make it all better. I continue to pray for Kaitlyn and your entire family. You are all in my heart and prayers.
    love
    Jennifer

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  137. Happy Love Birthday. I wanted to echo what everyone else has said. Kaitlyn has touched so many lives, people ask me about her every day. Although I have never met her, she has made the biggest imprint on my heart. You are a strong, amazing family. I am amazed by your faithfulness and grace as you move through this difficult time. I am so glad to see that you were able to hold Kaitlyn, she is a beautiful angel.

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  138. Thinking of you on your post love birthday! May God continue to fill your home with love and may he comfort sweet Kaitlyn right now.
    Shannon in Spartanburg

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  139. Happy Love Birthday! You and your amazing family are in my thoughts everyday. I shed a tear every time I read your post. Please know that there are so many people out here that are so touched by your little angel Kaitlyn.

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  140. What a beautiful present to be holding sweet Kaitlyn in your arms. We all love you and are praying for you constantly. lots of love and hugs to you on your Love Birthday!

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  141. I have following your journey for months now...it has truly been a blessing to see the love of the Lord in your struggles. Thank you for sharing and inspiring a renewed love of life and Christ in my own journey.

    Happy LOVE Birthday - and you and your family remain in my thoughts and prayers.

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  142. Deanna, I am a friend of Debbie's and I want to wish you a birthday that wraps you in all the warmth that love can give. As a matter of fact it looks like in your pictures, that you are holding it.

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  143. I have another comment, you are truly holding love in your arms, she is beautiful. Missy knows me I am a friend of Debbie, a teacher and a parent, so if you need errands run, grocery shopping etc. I am at 817-980-7767

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