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| No matter how hard I try, I can never get close enough to her! |
Unfortunately, Kaitlyn is still not responding to the Lasix (diuretic). She hasn't had any wet diapers today, despite a 2nd dose of Lasix this morning. Her heart rate is normally in the 90s/100s and she is now in the 140s/150s. Her hands and feet are ice cold while she has a fever over 102. These are all not good signs. We have had to continually lower the alarm threshold so that the alarm isn't going off all the time. Right now we have the alarm set to go off at 80 for oxygen and 155 for heart rate. It's gone off twice in the past hour for both reasons.
We will continue to make her comfortable for as long as she is with us and thank God for every precious moment we have with her. She is truly amazing and we are blessed to be her parents.
I lift my eyes unto the hills
Where does my help come from?
My help comes from the Lord
The Maker of Heaven and Earth
Sending my prayers everyday. Always thinking of your family. You all are truly an amazing family and blessed to have each other.
ReplyDeleteSENDING MY PRAYERS ALSO. YOUR FAMILY IS AMAZING AND INCREDIBLY BEAUTIFUL. YOU ALL ARE SO STRONG. I WISH THAT I MIGHT HAVE THE SAME STRENGTH AS YOU IN A SITUATION LIKE THIS, I CAN'T SAY FOR SURE THAT I WOULD. I JUST THINK YOU AND YOUR FAMILY ARE WONDERFUL AND I PRAY FOR YOU PEACE AND AS MUCH COMFORT AS YOU CAN POSSIBLY HAVE.
DeletePraying for you. Crying with you. Thinking of you. Wishing I could hug you. Praising God through this storm with you. Loving my kids and my life more than ever because of you. Thank you! ~Anjel
ReplyDeleteMy heart goes out to you all! Kaitlyn truly is a blessing and an angel on earth. I pray for Kaitlyn to be comfortable and pain free. I pray for a sense of peace and comfort for her and you all as well. God bless!
ReplyDeleteWill continue to pray for Gods comforting hands!!!
ReplyDeletePlease, God...be with them. Comfort them, give them strength. Steel them, so that they may continue this fight. Ease any pain Kaitlyn may feel, and wrap her in your arms, assuring her of your love for her and her family. God bless all of you! Much love, appreciation, and respect!
ReplyDeleteContinuing to lift your family up in prayer. Sending much ove to you all.
ReplyDeleteOn my knees praying for your precious daughter that she may be spared pain and feel cradled in your love. Am also praying for strength and courage for you, her parents, that God may light each step on your path so that you know what is best. Thank you for your witness. Know that God is working powerfully through you and sweet Kaitlyn.
ReplyDeleteDeanna and Chip,
ReplyDeleteI am with you through spirit as you tenderly care for Kaitlyn. She looks so content, and I know the warmth of your presence is comforting to her. I pray so hard that she is pain-free, and she appears to be. May the good Lord continue to give you strength as you care for your darling Kaitlyn. God, hear our prayers.
Blessings as you love your darling Kaitlyn.
ReplyDeleteI do not know you or your family, but feel like I do. I love your family From reading your blogs and my heart breaks for you during this difficult time. I am praying for your strength and praying for Kaitlin's comfort.
ReplyDeleteMy love to your incredible family.
ReplyDeleteOur family continues to send loving thoughts and prayers your way. Praying for peace and comfort during this difficult time.
ReplyDeleteMy 5 year old son, Daniel, prayed today that "Kaitlyn will run and laugh in Heaven with Jesus and when we see butterflies we will know it is her. God, please tell her that I love her."
That is a beautiful thought, Kaitlyn is a little girl that has truly touched my life. She will live on thoughts forever.
DeleteWhat a great way to always think of Kaitlyn, whenever I see a beautiful I too will think of her.
Stacey
Thoughts and prayers to your sweet angel! You are the most amazing and loving family! You have taught me so much about love and faith! I strive to be half the mother/parent to my son as you are! Your children are so lucky! Praying for Kaitlyn to be at peace and without pain!
DeleteYour love and faith is so amazing. What a beautiful child. Praying for all of you.
ReplyDeletecontinuing to pray for you all and sending you so much love.
ReplyDeleteDear Lord please bring peace and comfort to Kaitlyn. Take away her pain, comfort her mommy and daddy and all those who love her so dearly. She is a precious soul doing your work through those who hear her story. In Your holy name, Amen.
ReplyDeleteThere is not a minute that goes by that I am not thinking of you all. My prayer tonight is for peace and quiet so that you may hold your precious Kaitlyn as she sleeps. I pray that God wraps his loving arms around you as you continue to care for your baby. Prayers for no pain, for comfort and love. God Bless all of you. Kaitlyn, whether you go home tonight or many nights from now.....you have touched me and so many others in your short life. I will never be the same. I will always cherish what your parents have shared with us.....your life. God Bless sweet Angel.
ReplyDeleteAmy Barrett, Gainesville, VA
http://youtu.be/RvIEJ_PmqJ8
ReplyDeleteConstant thoughts and prayers being sent up for Kaitlyn and family.
ReplyDeletePraying for Kaitlyn and you all and knowing He is holding you all.
ReplyDeleteThinking of Kaitlyn & praying for her comfort & peace until she spreads her little wings...you have allowed her to touch so many people & I am proud of how much ive personally changed since I started reading your blog months ago...i send prayers love & strength tonight (as I do every night & several times a day)
ReplyDeleteDeanna and Chip,
ReplyDeleteI have never met you but I feel like Kaitlyn is part of my family. I think of her constantly. My love and prayers go out to her. Your strength and perseverance inspire me to live a more holy life.
Amy Smith
My heart is just broken.. I really don't know what to say to this precious little family other than I am praying for all of you...I am blown away at how you are staying so strong during this storm... I know it can only come from your faith in God... This little girl is beyond blessed to be surrounded by so many amazing people.. Sending love, hugs, and prayers your way!
ReplyDeleteContinuing to pray for beautiful Kaitlyn. I'm in awe of your strength and courage. May God comfort Kaitlyn and wrap His arms around her.
ReplyDelete1 Peter 5:10
Praying for you and your family. Praying that precious Kaitlyn is as comfortable as she can be and your strength guides you. You are amazing and Kaitlyn is an amazingly strong little girl. Sending tons of love, hugs and prayers your way!!!
ReplyDeletePraying Kaitlyn is without pain while feeling the love from her parents and everyone here who is trying to absorb her pain and yours through this very difficult time. I cry each and every day for all of you. I am so sorry.
ReplyDeleteLinda Dietz
Your family is so strong.. Even though I don't know you, kaitlyn is in my prayers daily. My family an I pray for you daily. Sending lots of love an prayers. Love from the Lee's in Maine.
ReplyDeleteKaitlyn is so precious. I have been following your blog for a while and I think of her (and you) often (many times daily). She has touched my soul and I send good thoughts your way all the time. Sending much love.
ReplyDeleteYour family continues to remain in my prayers. Kaitlyn is so very lucky to have been brought into such a loving family and I know you are thankful for every moment with her. May God watch over her now and ease her pain and yours...God bless you!
ReplyDeleteThinking and praying for your little angel! Your courage and strength are truly inspiring. Your family has taught me so many things about love and faith! I strive to be half the mother you are to your little girl! I have learned among other things to cherish and be greatful for every second of everyday thanks to your family. Kaitlyn's purpose lives on in all that have fallen in love with her and your family! Praying for comfort and peace for all!
ReplyDeleteGod bless this amazing family. Envelop them tonight and tomorrow and always. Forgive me for being only a glimmer of the light Kaitlyn shows. Thank you for this family who I may never know yet have changed my life forever.
ReplyDeleteLord please wrap your loving arms around kaitlyn and please lord keep her comfortable. I lift her family up to you lord as they are dealing with all of this you continue to make them strong and amazing people. In jesus name I pray...AMEN!!
ReplyDeleteI will never be able to put into words how Kaitlyn and your family has touched my heart. I have not posted on the blog before but have followed her story closely. My heart breaks as I read this... I will never forget the first day i found this blog, within seconds my heart was stolen by a curly headed cutie. Sweet Kaitlyn, I will forever be thankful for your precious life - You have changed me forever and I am a better mother to my own little girl because of it. Deanna and Chip, I hope you know that you are loved and supported by many.
ReplyDeleteMy thoughts and prayers are with you all!
Berkley Savage
I have never met u but I pray for you and your family daily! My heart breaks as I read your updates...because of your story I hold my little boy tighter and thank God for each moment I have to be his mom. You are a testament to Gods love and faith...even in this darkest hour you praise Him in this storm. I pray that Kaitlyn sleeps peacefully and that you are able to hold her close tonight. Thanks for your example of unending faith!
ReplyDeleteI don't know you personally, but I feel like I do after reading your blog. God bless your family and your sweet, precious Kaitlyn. I pray that she is peaceful and finds comfort in the love that surrounds her. Your strength is inspiring and breath-taking. Reading your blog has changed me forever. Thank you for sharing your personal and amazing moments with Kaitlyn.
ReplyDeleteI pray for a peaceful night for Kaitlyn and strength and comfort for you and Chip. I love the picture of you snuggled next to her. I hope you can both rest like that all night. Love from my family to yours!
ReplyDeleteSweet baby girl, may you rest quietly in God's arms and may He lift you gently up when He feels it's time. You are a precious little princess and have been a blessing to so many on this earth. You have fulfilled a great mission!
ReplyDeleteMy thought and prayers go out to your family, I have been reading and praying that God watch over kaitlyn in her time of need. I hope that God gives her all the comfort and peace that she needs. I pray that God be with you and gives you the strength and understanding that you need to support Kaitlyn and make her as comfortable as possible. It is truly awesome to see how good God is when we turn to him and leave everything to him. I continue to pray for your family and ask for peace and comfort for Kaitlyn.
ReplyDeletePrayers going up for your family tonight. I have a friend here who is also dealing with a terminal child and I cannot imagine the pain that this entails. But there is one who knows what it's like to watch their child suffer and I pray He brings peace and comfort to you all. The pictures are so precious. Thank you for sharing.
ReplyDeleteI am continually Praying for our family. It breaks my heart and I can't help but tear up that a sweet beautiful innocent child and aloving family have to go through this. I pray she I pain free and rests well tonight and that your family have the strength to make the best decisions for her and difficult as it may be.
ReplyDeleteSuppose to say Your.
DeleteChip and Deanna,
ReplyDeleteMy prayers continue for your precious family, especially Kaitlyn. I have my grand-babies tonight and I am awake, listening to their soft easy breathing and feeling so incredibly grateful they are happy and healthy because I know, it could easily be any of us who are in your place.
Kaitlyn has touched and continues to touch so many. I pray the Lord will continue to have his hand on her, keeping her peaceful and comfortable. Deanna and Chip, I also pray for strength and peace for you. I don't "know" you but I love you all and my heart breaks for you.
Sending love and hugs,
Becky Bramer
I am praying for mercy, peace, and comfort for Kaitlyn and your family.
ReplyDeleteMay He who is able wrap His arms around you and give you great strength, courage, and peace.
We are praying so hard for your family..We know kaitlyn is feeling so much love from earth and beyond. Praise God!! My heart breaks for you yet I know God is with you.
ReplyDelete-Donna Clements and family
Prayers, Prayers and more Prayers coming your way from Gaithersburg, Maryland. I know that Kaitlyn can feel all the love of those thinking of her everyday, all the love of her amazing parents & Family and most importantly, God's love!
ReplyDeleteI am praying for you to have continued strength and Kaitlyn to find peace and comfort.Come what may GOD is with you.
ReplyDeletePeace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid.
ReplyDeleteJohn 14:27
It is so very difficult to watch a child being slowly taken away by a horrible disease. I am so so sorry. Kaitlyn is such an amazing little fighter and has touched so many lives. She will most certainly live on forever in the hearts and minds of so many. I lift her and your whole family in prayer. You are all such a inspiration to me and I am forever grateful to you for sharing Kaitlyn and her story with us all. God bless you all!
ReplyDeleteThinking of you and your family.
ReplyDeleteWe think about Kaitlyn and your family so very often. We pray for your strength, for your support during this most difficult time. Let her be surrounded by love, and welcomed by God when it is her time. Bless little girl Kaitlyn. Bless Deanna, Chip, and little Cole also.
ReplyDeleteLove from Virginia
praying, praying and more praying...may the Spirit surround you and your family with all that you need for this day.
ReplyDeleteLifting you all up before the Father.
ReplyDeleteHoping Kaitlyn remains comfortable and finds peace. Thinking of you and your family daily...you have all (especially Kaitlyn) touched so many.
ReplyDeleteThe Dear Lord knows when to arrive with his Angels....Praying for peace and comfort for Kaitlyn and all of you. God Bless
ReplyDeleteThinking of Kaitlyn all day and praying for each of you continuously.
ReplyDeletePraying that God would overwhelm your family with His perfect love and peace. Continuing to pray for Kaitlyn's comfort. Much Love! The Russells
ReplyDeleteKaitlyn's Mom, I don't know you but you are my hero. I wish I had an ounce of your strength. May God bless you and your Husband.
ReplyDeleteBTW- I have praised him in many storms and I love that song.
I pray for your family daily and I think of you many times a day.
I pray that you feel Gods comforting arms wrapped around you. This storm is a huge one, but He is there, holding onto you. Bless you all.
ReplyDeleteI have been following your blog for a couple of months now since I first saw it on Kimberly Donathen's page. I pray for Kaitlyn , you, Chip and Cole daily. As a mother I cannot imagine what y'all are going through. There are really no words to express how your Kaitlyn and your family has touched my heart. I am certainly more grateful for the little joys of everyday life. God's love shines through your family. Kaitlyn has touched more lives than you will ever know. May God's peace and comfort be with you all. Love in Christ, Gena Bennett-SC
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