About Us

In April 2010, our precious daughter Kaitlyn was diagnosed with Niemann-Pick Disease (Type A), a rare, fatal genetic disease with no cure. We decided to create this website for our family, friends and other families confronted with Niemann-Pick. It is our hope that we can help others by sharing Kaitlyn's journey. Our sweet girl lived a full life from July 1st, 2009 - March 22nd, 2012.

Wednesday, March 7, 2012

Lab Results

The lab results show that Kaitlyn is anemic and her bilirubin (jaundice) is very high. Her total bilirubin is 8.3 on a normal scale of (0.2 - 1.4). I am waiting to hear back from the hematologist regarding his thoughts on the labs.


26 comments:

  1. Thinking of you and sending you strength, love and peace.

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  2. Sending prayers and love your way.

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  3. Many, many prayers sent.

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  4. Sending prayers too you.

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  5. Sending many prayers to you and your sweet Kaitlyn!

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  6. You all are in my thoughts and prayers. May god grace you with the strength to face the difficult days ahead.

    Stacey

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  7. Praying

    Linda Dietz

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  8. Sending love and prayers for Kaitlyn right now.

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  9. Prayers are on there way!

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  10. oooh baby girl...we are thinking of you so much tonight!!!

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  11. Praying for Kaitlyn and your family daily.

    Debbie Johnson

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  12. Thoughts and prayers always and extra extra tonight!

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  13. Praying always!!

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  14. Strength and Prayers are being sent your way.

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  15. I am praying for your daughter and your family. God love you all.

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  16. Many many thoughts , prayers, and heartful blessings being sent. Much love to you all.

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  17. Thinking of you. Sending you all strength, faith and peace.

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  18. Covering you with fervent prayers. May the Creator and Author of Life shelter you all in the palm of his hand, world without end.

    - Ben and Kelly Conner

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  19. Love and prayers being sent your way. Praying that Kaitlyn is feeling no pain and your family is remaining strong. She is an amazing and such an incredibly strong little girl....and its all because of the wonderful care and family she has surrounding her.
    Hugs to your family!!!

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  20. I've been reading your blog for a while now. I always pray but I never commented. Today I had to tell the women at work about kaitlyn and we all prayed for her as a group, and we will continue to pray...for her and you, her family. Many many prayers are being sent!!

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  21. Prayers going up! Gotta say, she is one gorgeous girl! Even with her cute little tint she is still very beautiful! Her beautiful curls are so sweet and tender...your love is evident on her face, in her hair, with every bow and cute outfit! I pray for you all. Comfort. Peace.

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  22. Sending prayers to sweet little Kaitlyn and all of you.

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  23. Praying for this sweet child and you and Chip. I am so incredibly sorry that you are going through this. Paul and I talk and pray daily about and for your family. Thank you for taking the time during this difficult period to give us updates. It means a lot to those of us who are following your journey.

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  24. Praying so much for Kaitlyn and you all. She's so beautiful and loved!

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  25. Prayingalong with friends, that Kaitlyn Will be at peace, without any pain, brathing easy. Praying for strenght for you and Chip to handle things.I love little Kaitlyn and all of you so much.May God Bless this wonderful family

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  26. A friend in Indian TrailMarch 8, 2012 at 11:16 AM

    We have been praying for you for the past two months (when a friend first pointed out your blog)...your daughter's courage, as well as your own, are an inspiration. We have asked our friends around the world to join in the prayers for Kaitlyn... May God bless you all, and grant you His peace. We're in just another corner of IT... :)

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