In April 2010, our precious daughter Kaitlyn was diagnosed with Niemann-Pick Disease (Type A), a rare, fatal genetic disease with no cure. We decided to create this website for our family, friends and other families confronted with Niemann-Pick. It is our hope that we can help others by sharing Kaitlyn's journey. Our sweet girl lived a full life from July 1st, 2009 - March 22nd, 2012.
Wednesday, March 7, 2012
The lab results show that Kaitlyn is anemic and her bilirubin (jaundice) is very high. Her total bilirubin is 8.3 on a normal scale of (0.2 - 1.4). I am waiting to hear back from the hematologist regarding his thoughts on the labs.