Kaitlyn is writing her own book when it comes to how she is doing... You never know what to expect with her! She still has swelling but her heart rate has gone down and her oxygen is a little better.
She is still not responding well to the Lasix. We have been holding feeds, which is really mentally hard to do as a parent, but knowing that it would only cause the swelling to get worse makes it the right thing to do.
We are giving her morphine every 3 hours and she has been asleep pretty much all day. She will open her eyes for a minute and then go back to sleep. As far as we can tell, we are managing her pain.
We did have a little fun, even while Kaitlyn was asleep. Aunt Jess came down to see us and we celebrated my Mom's (Gigi's) birthday upstairs with Kaitlyn.
Cole needed to get some energy out so he got to go to the park in our neighborhood!
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| Needing to get outside |
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| He is always so animated! |
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| Wow that's high! |
Sounds like an amazing day. So glad you were able to celebrate your mom's birthday. I love the pic of the 5 of you stacked (teddy included). Cole seems to have a lot of energy. I bet he and Kyra would get along really well. What a beautiful day you had today! ~Anjel
ReplyDeletePraise God for a good day. Kaitlyn and you family have been in my thoughts and prayers throughout the day. Continuing to lift you up In prayer.
ReplyDeleteI have been waiting for an update on how Kaitlyn is doing all day! Praise God she is doing well. She is such a beautiful little fighter. I have been on this journey with you so long, I feel like Kaitlyn is family. Thank you so much for letting me be part of this journey with you. All my love to your family. Prayers always...
ReplyDeleteAmy Smith
So thankful Kaitlyn was able to celebrate her Gigi's birthday...the photos of all the "girls" (except for Teddy) are priceless! Glad also that Cole had a chance to get outsde and be his sweet little boyish self. Love and prayers continue!
ReplyDeleteShe is so amazing....prayers being said.
ReplyDeleteWhat gorgeous pictures of you four! Thinking about and praying for you all constantly.
ReplyDeleteAnne Moore
So glad that she is pain free! That's been my prayer as I am sure it has been yours. God bless you all.
ReplyDeleteLOVE the picture of you all cuddling Kaitlyn...those are treasures. What amazing love.
ReplyDeletePrayers continue...praising God with you.
The pics are gorgeous!!
ReplyDeleteThe pictures of your sister and mom and yourself with Kaitlyn are absolutely precious! Something to be treasured! Bless your family and many prayers to you all for comfort and strength!
ReplyDeleteGlad Kaitlyn got to celebrate Gigi's birthday and be one of the "girls". She is such an inspiration! Prayers for continued peace and comfort for your little princess! God bless your family!
ReplyDeleteMy heart breaks a little more & builds a little stronger at the same time everyday...i continue to think about Kaitlyn more than you could imagine...& pray for her more than ive ever prayed for anyone in my life
ReplyDeleteI have been reading your blog for a while now. Your family amazes me. Even though I have never met any of you and don't know your family personally, I think about you all every day. I find myself praying throughout the day for Kaitlyn and wondering how she is doing. Being a mom myself, I cannot begin to imagine how difficult this is, yet you have faced it with an attitude and faith that are so inspiring. God chose you to be Kaitlyn's parents, knowing what you would face with her. But, He chose you because He knew you would take care of her in a way that most parents would not be able to do. You are not facing this alone. God is with you on this journey and so many more people like me lift you up in prayer daily. Thank you for sharing your journey with us.
ReplyDeleteGlad to hear that you all had a wonderful day together. The pictures of all the girls are amazing. Those will be treasured forever. I continue to pray for strength for your family. Praying for peace and pain free days.
ReplyDeleteDeanna,
ReplyDeleteI can almost feel the vibes of love coming from your mother through her daughters and filling Kaitlyn's body and soul. You are truly a very special family and how lucky Kaitlyn is to have you. We will continue to keep you in our thoughts and prayers. God hear our prayers that Kaitlyn is not and will not suffer through her ordeal.
Still praying for you all every hour. This morning a song came to mind that I think Miss Kaitlyn would like. Check out Where I Belong by Building 429.
ReplyDelete"All I know is I'm not home yet. Take this world and give me Jesus. This is not where I belong"
http://www.youtube.com/watch?v=lOtsB4O1p3o
I pray that you all enjoy your days together now and continue to seek God's guidance.
Love, Shannon
Such fun and priceless photos!! What a beautiful family - praying for you all everyday. Like someone mentioned earlier, even though I have not personally met any of you, you've become like family to me.
ReplyDeleteGod's blessings for peace, strength and comfort on precious Kaitlyn, sweet little Cole, you, Chip, and all of your family.
Starr Black, Concord
Shannon...heard the very same song Thursday and had the exact same thought!!!
ReplyDeletePrayers inbound hot for Miss Kaitlyn, you, Chip and Cole. You are who she needs at her side, and I know she loves you all. God blees you, stay strong, keep the faith. Much love and tons of prayer headed your way...
I just love the picture of the four of you head to head. You all are beautiful, inside and out.
ReplyDeletedear sister in Christ i kno nd understand wht u r feeling at the moment....... put ur burden on Jesus and he ll gv u rest.... as i was going through ur blog tears rolled down my eyes seeing the beautiful baby barbie doll sleeping..... when i closed my eyes for a minute all i would see was Kaitlyn sleeping peacefully in the arms of Jesus with no tubes and pain around her, take courage sister u r going to meet her again,she'll come down flapping her wings down like an angel...... imagine she's playing with other angel's, playing catch with Jesus, such a wonderful sight..... have courage.....
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