Kaitlyn is still here with us. She got some really good rest yesterday during the day but last night she was up most of the night coughing and restless. She was able to tolerate some water and Pedialyte through her G-tube yesterday and last night but that is pretty much it other than medicine. We are suctioning her mouth A LOT cause of the thick stuff she is coughing up. It's a really difficult balance to make sure that we are doing the best for her (such as suctioning, etc) and at the same time keeping her comfortable. The two don't always match up. All we can do at this time is the best we can.
Here are some pictures from last night (Tuesday night):
Here are some pictures from last night (Tuesday night):
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| Saying goodnight to big sis |
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| Cole giving a hug to Kaitlyn's Bunny |
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| Cole is pointing at Kaitlyn's cool hanging butterflies, lanterns and balloons |
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| Part of the ceiling decor above Kaitlyn's bed |
May today be calm....
ReplyDeleteNanci & Mike Glassman
It is a fine line, but know that whatever you do it will be the right thing. Peace and love to all of you.
ReplyDeleteWhat a fighter. She is just so precious. May God hold you all in his arms and comfort you. Love every minute of being with that sweet little girl. My prayers are with your family.
ReplyDeleteDeanna and Chip I am so sorry you both are having to go through this adversity, only God knows what will come out of this, I am sure right now you are thinking what good can come out of this, if there is anything I can do please let me know, I know what it is like to lose a child but not what you are going through now, please know that I am thinking and praying for you all day and night, may God wrap his arms around your precious family and guide you through this, with peace in your hearts. Again I am so sorry.
ReplyDeleteStill praying. <3
ReplyDeleteEvery decision you make is good, all out of love for Kaitlyn and through God's guidance. Our prayer is one of peace and love and comfort for all of you.
ReplyDeleteLove,
Laurie & Dave High
Praying for you and your family during this difficult time.
ReplyDeleteI am so amazed by the strength you all have! I am in awe of you & your strength, love, dedication, & pure hearts of gold. You all are providing the utmost best, loving life for your sweet kaitlyn even when there are times when you must just want to say "why us?".
ReplyDeleteKaitlyn truly knows love, there's no doubt about it! I can surly feel it thousands of miles away. I hope my love & hugs are reaching her & you all as well. Especially her sweet lil brother too! I love the pics of Kaitlyn & Cole. He seems so sweet, gentle & loving with her. You & Chip are a perfect example of what parents should be. That definitely shows in the love, kindness & sweet nature of your children. May God continue to bless you all during these difficult times. Prayers for peace, painfree days, lots of lovin on that angel Kaitlyn. Sending love & continuous prayers from here in So CA.
<3
Amy T.
Wishing the whole family peace and comfort during this time. Although its hard, I hope you have some beautiful tender moments to treasure forever. God bless,
ReplyDeletePraying for your precious family. I pray that Kaitlyn is comforted by all the love and strength of her family. You and Chip are incredible parents and she has been very blessed to have the two of you. Praying for comfort, strength and understanding for her little brother Cole.
ReplyDeleteLove to your family,
Kara H.
I have been crying and praying and thinking of Kaitlyn and your family constantly. I don't even know you guys, but you and Kaitlyn have touched so many lives.
ReplyDeleteEndless thoughts, love and prayers to Kaitlyn and your entire family. Kaitlyn is a true angel that has inspired us more than you'll ever know. You are exceptional parents. If you should need anything, please let us know. Love to your family....The Underwoods (neighbors)
ReplyDeleteI can't even imagine where you're finding the strength to post updates. My heart breaks for you and your family! God has you and Kaitlyn surrounded by his love. Peace be with you!
ReplyDeleteI woke this morning thinking and praying for you guys and the comfort for Kaitlyn. I pray that you guys continue to keep up your own strength during this time. May god continue to watch over you all!
ReplyDeleteAs always, my thoughts and prayers are with your family. God bless you!
ReplyDeleteYou're doing great. I pray for God to be there with you, thru all the decision making to guide you. I also pray that God give Kaitlyn ULTIMATE peace, comfort, and love that nothing will or is hurting her at all. You're doing great, and your care for her is so honest and apparent. I want to be a mother just like you one day.
ReplyDeleteShe will have wings and be beautiful forever...
ReplyDeleteWhat a fighter! Continuing to pray.
ReplyDeleteContinuing my prayers for your family.
ReplyDeleteYou are constantly in my thoughts and prayers.
ReplyDeleteYour story has touched me in an way that I cannot explain. What a strong little angel you have! And you're strength is beyond words. I'm sending lots of prayers your way!
ReplyDeleteI am praying daily for comfort for Kaitlyn and your family! While sitting here every day amazed at how many lives your little ANGEL has touched including mine. If we as adults where only so lucky to be able to touch people this way the world would be a much better place. With LOVE and PRAYERS!
ReplyDeleteGod love you.
ReplyDeleteMany prayers are being said for Kaitlyn and the family. For peace, and comfort, for no pain, for the loving moments as you spend time together as a family. Your strength during this difficult time is amazing. The pictures you posted holding hands with Kaitlyn while resting brings tears to my eyes and a smile to my lips. The love for one another in your family shows in your posts and in the pictures you share with us. God bless you.
ReplyDeleteThinking of your family... sending love and prayers for peace, comfort, and the Presence of God to permeate every moment of every day for you all.
ReplyDeleteMuch love,
Misti
We couldn't make it to the candlelight vigil tonight but both Cade and Avery said a special prayer for your family and especially for Kaitlyn! May God Bless you and grant you peace and comfort during this difficult time.
ReplyDeleteYour neighbors,
The Boguslaw's
I am so sorry to have heard this about such a young and beautiful child or any child for that fact. I will keep Kaitlyn in my thoughts and prayers as well as the rest of the family too. Kaitlyn is so lucky and blessed to have such a loving family that you stay by her all the time and try your best to love support and keep her comfortable. I'm sure it gets it's hard and rough times but keep your faith and trust in the Lord and he will see you through. God bless you all and I will try to follow your updates your in my thoughts and prayers.
ReplyDeleteLove in Christ,
Lynne Wood
Praying for comfort and God's love to you all. Stay strong. We love you
ReplyDeleteMy prayers are with you and your family. May your beautiful angel be wrapped in God's arms and kept from all pain. You are such an inspiration with your strength and courage, from one mother to another. God bless you always.
ReplyDeleteMary
It is better to have loved and lost than to have never have loved at all. You have given her a beautiful life no matter the length. Thank you for sharing. Your family is in my thoughts. Hugs, Annie NPDB
ReplyDeleteSooooo beautifull photos!!! So much love... You are so strong beautiful people. The decoration looks so nice. At every point you are making the best of the situation. Kaitlyn is so beautiful and I love how her hair looks! I wish you beautiful moments... And I so agree with the last post. My thoughts are with you. Love from Greece.
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