It's Sunday morning and Kaitlyn had a rough night of coughing, distressed breathing, and elevated heart rate. Jacques, RN with hospice told us to look for signs including- increased heart rate, changes in temperature, blotchy/mottled skin color and changes in her breathing pattern.
As of this morning, her heart rate is elevated, she has a fever of 103.4 and distressed breathing. She isn't tolerating feedings at all either. We know what is coming, we just want her to be as comfortable and pain-free as possible.
Dear God, please wrap your arms around Kaitlyn and take away any pain or fears that she may have at this time. Lift her up and surround her with your angels when she is ready to move on.
As of this morning, her heart rate is elevated, she has a fever of 103.4 and distressed breathing. She isn't tolerating feedings at all either. We know what is coming, we just want her to be as comfortable and pain-free as possible.
Dear God, please wrap your arms around Kaitlyn and take away any pain or fears that she may have at this time. Lift her up and surround her with your angels when she is ready to move on.
Deanna - I woke with you guys on my heart and mind and came straight to the computer for an update. Thank you for continually posting. Kaitlyn has been blessed with amazing parents here on earth and the Lord has held her the whole way and will continue to. Thank you for helping us know how to pray for her. We are praying for you and Chip too. love, the Andrews
ReplyDeleteMy heart goes out to you during this difficult time. Kaitlyn is so blessed to have such amazing parents! You are continuously in my thoughts!!!
ReplyDeleteAli Reardon
Thank you for the updates. May God give you strength and may Kaitlyn be comfortable.
ReplyDeleteNanci & Mike Glassman
Deanna and Chip, I've been following the blog and my heart has been heavy for you all and Kaitlyn. Praying for strength and comfort for all of you. May you be supported by the many around the world who care for you and who have been so touched by Kaitlyn. God Bless, Eileen Blake
ReplyDeleteDeanna,
ReplyDeleteI have been following your blog for a while now. We live in Peachtree City, GA and a group of us are praying for your families comfort and peace during this most difficult time.
Praying for comfort and peace for Kaitlyn.
ReplyDeleteKaitlyn and your family have been in my prayers as you seek to keep her comfortable. How I admire your strength. May the promise of everlasting life give you comfort.
ReplyDeleteBlessings, Peggy Hughes
Deanna and Chip,
ReplyDeleteI woke up and prayed for Kaitlyn and your family this morning. We are here for you and will continue to pray. May God bring you comfort and peace and make Kaitlyn as comfortable as possible. With Love, the Russells
Love you guys. Our hearts ache with and for you but I know kaitlyn will be in God's arms soon.
ReplyDeleteDeanna and Chip you both r very stong parents and i pray for yall every day that the Lord will lift you up as u go throuh this hard time... I pray that God wraps his arms around kaitlyn and takes all the pain away from her as she is goin through this hard time.... Im very sorrry that she and yall have to go through this no one should ever go through that ... Im here for yall if you need me ......
ReplyDeleteso sad to think that ill never get the chance to meet her . Im praying for her everyday.
ReplyDeleteKaitlyn u and your family remain on my mind...I pray God gives this baby comfort...God place a band of angels around this baby n her family...u all r a true inspiration to us all
ReplyDeleteI had Kaitlyn on my mind in church today and prayed for her to have peace and for your family also. Jeannette Toscano is my daughter and I have followed your blog through her. I will continue to pray for you all.
ReplyDeleteWe spent the last 10 hours of Calum's life asking him to let go.......Its such a tough time in your life. Our thoughts are with you, we genuinely know what you are going through
ReplyDeletePraying for comfort for Kaitlynn and that God will take away any pain or fears that she may have at this time. Also praying for continued strength and peace for you, Chip, and Cole. Lots of love is coming your way from many people.
ReplyDeleteDeanna, Chip, Cole, and Kaitlyn,
ReplyDeleteYou each are in my prayers today. A day does not pass that I do not think of and pray for you guys. My heart truly aches for you all... I have no doubt that the Arms of the Father are holding each of you close. Sending hugs from SC.
Misti
Deanna, Chip, Cole, & Sweet Kaitlyn,
ReplyDeleteUpon wakening Kaitlyn was the first thing on my mind. I'm so sorry she I's having such difficulties & know what is ahead. But may God grant you comfort & peace during this time when you need him most. You two are the most strong, loving, dedicated parents & if I can feel such love coming through the computer screen, I can only imagine how much love & happiness your sweet children feel from the two of you! You will all be lifted up in my prayers today. Kaitlyn you are so loved by so many people & even by those who've never met you. I pray for peace sweet girl...peace, lots of comfort & LOVE!
praying for each of you. sending love and hugs your way. may He continue to hold each of you so so close. you are doing an amazing job parenting that precious girl and loving her through this.
ReplyDeleteI wake up everyday thinking of Kaitlyn and your family....first thing I did today was check your blog. My heart hurts for all of you...I pray for God to comfort her and keep her peaceful. I am so so sorry that you are going through this pain and that Kaitlyn has been going through such a difficult time, it just breaks my heart. Praying for all of you and you are in my thoughts each and every second. May God comfort your family and keep Kaitlyn close.
ReplyDeleteDeanna,
ReplyDeletePat Ryan of TCPC introduced me to your blog and I have been reading it and praying for your family for the past few months.
I hope that you will feel supported by the love of family and friends and will be sustained by God's grace and the promise of eternal life through Him as you go through this difficult time. May God give you all the strength and courage to get through this next chapter of your lives. I'll continue to keep your family, and especially sweet Kaitlyn, in my thoughts and prayers.
God bless you all,
Rosemary Beard Heflin
Charlottesville, VA
Kaitlyn has been on my mind all weekend, as have you, Chip and Cole. I am praying for peace, love and comfort for each of you. I am praying Kaitlyn feels all the love surrounding her. I am praying for strength for you, Chip and Cole.
ReplyDeleteAmen to that...let god wrap God wrap his arms around her and let be able to feel all the love that is directed to her
ReplyDeleteLove and prayers to all of you!! He string. God is with you!
ReplyDeleteGod bless her and your family. She will be home soon. Safe, warm, loved, and pain-free. And never forgotten.
ReplyDeleteMy thoughts and prayers are with you and your family. I am so sorry that you are going thru such a heartbreaking ordeal. Please know that there are many people in Maine praying for you!
ReplyDeletePraying for you all. Thank you for allowing me to know Kaitlyn, she has truly blessed my life. Sending my love and prayers to her.
ReplyDeleteMarsha
Sending love and prayers. You all are in my constant prayers.
ReplyDeletePraying that you all receive strength, comfort and love during this difficult time. I admire you and Chip and hope you find comfort knowing Kaitlyn has impacted and inspired many near and far. May you all be in peace. Elin Nilsen
ReplyDeletePrayers have been sent your way from a stranger touched by your story. Praying for peace, comfort and love. May a cure be found
ReplyDeleteAs a mother who lost a very young baby due to health issues, reading about Kaitlyn's transition into eternal life really hits home hard. My heart aches for you and your family and sweet little Kaitlyn. As she begins her journey home to eternal life, be there for her to comfort her into God's loving arms and know how very blessed you are to have such a special little angel in your life.
ReplyDeleteMy heart is breaking for you right now. Please know you are in our thoughts and prayers. We can't even imagine what you are going through. You are so strong. What an example of God's pure love you are showing right now. Be strong and know you are loved and wrapped int he warmth of those surrounding you and praying for you.
ReplyDeleteMay God Bless this beautiful little child and surround her with His love. I'm praying for all of you.
ReplyDeleteI worked in hospice for many years...there's another sign you can check for after her transition: a strange, warm peace. It's as if they are there with us in the room saying, "It's OK...and I'm OK". (That's the way it's been described by families). I pray this peace for you as the Lord holds you wrapped in His arms and the angels eagerly await her arrival. Doesn't make the transition any easier on you all, I know, and my heart aches for your temporary loss. Know that you will all spend eternity together with no sickness..only wholeness in Him. Love from VA!
ReplyDeleteI have friends that are related to Wylder James and have been following his and now Kaitlyns blogs for several months now. I have a 2 year old daughter who always looks at kaitlyns pictures with me and smiles. We constantly pray for your family and for kaitlyn. May she have peace, comfort and love. Warm thoughts and arms around you from a mommy and daughter in Colorado.
ReplyDeleteMay you find peace and comfort as your precious angel is wrapped in the arms of our Eternal Father. I was brought to your blog through a friends post. My heart breaks for you and your family. My thoughts and prayers are with you during this difficult time. God bless.
ReplyDeleteMy heart aches with all kaitlyn and your family are going through. You are all in my thoughts and prayers.
ReplyDeleteWhat tremendous faith you all have! It's beautiful to see your sweet girl holding onto her rosary, I'm sure when God does call her home, our Blessed Mother will take her there by hand! What a wonderful job you are doing in this difficult situation, my heart aches for all you're going through. Our family will keep yours in our prayers. Our God is LOVE and PEACE and we pray that you always have both, especially in this challenging time. God bless you all. (Oh and it sounds like you have wonderful neighbors!! WOW! What a beautiful candlelight vigil!)
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